Temporal and Cartographic Analyses of the Distribution within Spain of Mortality Due to Granulomatosis with Polyangiitis (1984–2016)

por Sánchez-Díaz, Germán, Escobar, Francisco, Villaverde-Hueso, Ana, Posada de la Paz, Manuel, Alonso-Ferreira, Verónica
Publicado 2019

A Nationwide Registry-Based Study on Mortality Due to Rare Congenital Anomalies

por Alonso-Ferreira, Verónica, Sánchez-Díaz, Germán, Villaverde-Hueso, Ana, Posada de la Paz, Manuel, Bermejo-Sánchez, Eva
Publicado 2018

Diagnostic delay in rare diseases: data from the Spanish rare diseases patient registry

por Benito-Lozano, Juan, López-Villalba, Blanca, Arias-Merino, Greta, Posada de la Paz, Manuel, Alonso-Ferreira, Verónica
Publicado 2022

Geographic Analysis of Motor Neuron Disease Mortality and Heavy Metals Released to Rivers in Spain

por Sánchez-Díaz, Germán, Escobar, Francisco, Badland, Hannah, Arias-Merino, Greta, Posada de la Paz, Manuel, Alonso-Ferreira, Verónica
Publicado 2018

Familial Mediterranean Fever in Spain: Time Trend and Spatial Distribution of the Hospitalizations

por Gallego, Elisa, Arias-Merino, Greta, Sánchez-Díaz, Germán, Villaverde-Hueso, Ana, Posada de la Paz, Manuel, Alonso-Ferreira, Verónica
Publicado 2023

Mortality Due to Cystic Fibrosis over a 36-Year Period in Spain: Time Trends and Geographic Variations

por Villaverde-Hueso, Ana, Sánchez-Díaz, Germán, Molina-Cabrero, Francisco J., Gallego, Elisa, Posada de la Paz, Manuel, Alonso-Ferreira, Verónica
Publicado 2019

Tetralogy of Fallot in Spain: a nationwide registry-based mortality study across 36 years

por Llamosas-Falcón, Laura, Bermejo-Sánchez, Eva, Sánchez-Díaz, Germán, Villaverde-Hueso, Ana, Posada de la Paz, Manuel, Alonso-Ferreira, Verónica
Publicado 2019

A population-based study of mortality due to muscular dystrophies across a 36-year period in Spain

por Llamosas-Falcón, Laura, Sánchez-Díaz, Germán, Gallego, Elisa, Villaverde-Hueso, Ana, Arias-Merino, Greta, Posada de la Paz, Manuel, Alonso-Ferreira, Verónica
Publicado 2022

Psychosocial impact at the time of a rare disease diagnosis

por Benito-Lozano, Juan, Arias-Merino, Greta, Gómez-Martínez, Mario, Arconada-López, Beatriz, Ruiz-García, Begoña, Posada de la Paz, Manuel, Alonso-Ferreira, Verónica
Publicado 2023

Diagnostic Process in Rare Diseases: Determinants Associated with Diagnostic Delay

por Benito-Lozano, Juan, Arias-Merino, Greta, Gómez-Martínez, Mario, Ancochea-Díaz, Alba, Aparicio-García, Aitor, Posada de la Paz, Manuel, Alonso-Ferreira, Verónica
Publicado 2022