Designing a tool to support patient and public involvement in research projects: the Involvement Matrix

por Smits, Dirk-Wouter, van Meeteren, Karen, Klem, Martijn, Alsem, Mattijs, Ketelaar, Marjolijn
Publicado 2020

How children and their parents value using the Canadian Occupational Performance Measure (COPM) with children themselves

por Verkerk, Gijs J.Q., van der Molen-Meulmeester, Lisanne, Alsem, Mattijs W.
Publicado 2021

Parenting a child with Marfan syndrome: Distress and everyday problems

por Warnink‐Kavelaars, Jessica, van Oers, Hedy A., Haverman, Lotte, Buizer, Annemieke I., Alsem, Mattijs W., Engelbert, Raoul H. H., Menke, Leonie A.
Publicado 2020

Parental empowerment in paediatric rehabilitation: Exploring the role of a digital tool to help parents prepare for consultation with a physician

por Alsem, Mattijs W., Verhoef, Marjolein, Braakman, Jessica, van Meeteren, Karen M., Siebes, Renate C., Jongmans, Marian J., Visser‐Meily, Johanna M.A., Ketelaar, Marjolijn
Publicado 2019

Heritable Connective Tissue Disorders in Childhood: Increased Fatigue, Pain, Disability and Decreased General Health

por Warnink-Kavelaars, Jessica, de Koning, Lisanne E., Rombaut, Lies, Alsem, Mattijs W., Menke, Leonie A., Oosterlaan, Jaap, Buizer, Annemieke I., Engelbert, Raoul H. H.
Publicado 2021

Hospital-to-home transitions for children with medical complexity: part 1, a systematic review of reported outcomes

por de Lange, Annemieke, Alsem, Mattijs W., Haspels, Heleen N., van Karnebeek, Clara D. M., van Woensel, Job B. M., Etten–Jamaludin, Faridi S., Maaskant, Jolanda M.
Publicado 2023

Marfan syndrome in adolescence: adolescents’ perspectives on (physical) functioning, disability, contextual factors and support needs

por Warnink-Kavelaars, Jessica, Beelen, Anita, Goedhart, Tine M. H. J., de Koning, Lisanne E., Nollet, Frans, Alsem, Mattijs W., Menke, Leonie A., Engelbert, Raoul H. H.
Publicado 2019

Heritable connective tissue disorders in childhood: Decreased health‐related quality of life and mental health

por Warnink‐Kavelaars, Jessica, de Koning, Lisanne E., Rombaut, Lies, Menke, Leonie A., Alsem, Mattijs W., van Oers, Hedy A., Buizer, Annemieke I., Engelbert, Raoul H. H., Oosterlaan, Jaap
Publicado 2022

Hospital-to-home transitions for children with medical complexity: part 2—a core outcome set

por Haspels, Heleen N., de Lange, Annemieke A., Alsem, Mattijs W., Sandbergen, Bettina, Dulfer, Karolijn, de Hoog, Matthijs, Joosten, Koen F. M., van Karnebeek, Clara D., van Woensel, Job B. M., Maaskant, Jolanda M.
Publicado 2023

Physical Functioning After Admission to the PICU: A Scoping Review

por Bossen, Daniël, de Boer, Rosa M., Knoester, Hendrika, Maaskant, Jolanda M., van der Schaaf, Marike, Alsem, Mattijs W., Gemke, Reinoud J. B. J., van Woensel, Job B. M., Oosterlaan, Jaap, Engelbert, Raoul H. H.
Publicado 2021