Promoting Adherence to Iron Chelation Treatment in Beta-Thalassemia Patients

por Eziefula, Chinea, Shah, Farrukh T, Anie, Kofi A
Publicado 2022

Psychosocial impact of sickle cell disorder: perspectives from a Nigerian setting

por Anie, Kofi A, Egunjobi, Feyijimi E, Akinyanju, Olu O
Publicado 2010

P1441: REAL-WORLD OUTCOMES AND DIGITALLY MONITORED QUALITY OF LIFE IN CRIZANLIZUMAB-TREATED PATIENTS WITH SICKLE CELL DISEASE.

por Summers, Kim, Agrippa, Orlando, Anie, Kofi, Telfer, Paul, Lugthart, Sanne
Publicado 2023

P1448: CHARACTERISATION OF QUALITY OF LIFE-LINKED PATIENT-REPORTED OUTCOMES THROUGH A DIGITAL AND CONTINUOUS REMOTE MONITORING ECOSYSTEM IN SICKLE CELL DISEASE.

por Summers, Kim, Agrippa, Orlando, Anie, Kofi, Telfer, Paul, Lugthart, Sanne
Publicado 2023

Patient self-assessment of hospital pain, mood and health-related quality of life in adults with sickle cell disease

por Anie, Kofi A, Grocott, Hannah, White, Lauren, Dzingina, Mendwas, Rogers, Gabriel, Cho, Gavin
Publicado 2012

Sickle Cell Disease—Genetics, Pathophysiology, Clinical Presentation and Treatment

por Inusa, Baba P. D., Hsu, Lewis L., Kohli, Neeraj, Patel, Anissa, Ominu-Evbota, Kilali, Anie, Kofi A., Atoyebi, Wale
Publicado 2019

Low-dose hydroxycarbamide therapy may offer similar benefit as maximum tolerated dose for children and young adults with sickle cell disease in low-middle-income settings

por Inusa, Baba Psalm Duniya, Atoyebi, Wale, Hassan, Abdul Aziz, Idhate, Tushar, Dogara, Livingstone, Ijei, Ifeoma, Qin, Yewen, Anie, Kofi, Lawson, Juliana Olufunke, Hsu, Lewis
Publicado 2018

Utilising the ‘Getting to Outcomes(®)’ Framework in Community Engagement for Development and Implementation of Sickle Cell Disease Newborn Screening in Kaduna State, Nigeria

por Inusa, Baba P.D., Anie, Kofi A., Lamont, Andrea, Dogara, Livingstone G., Ojo, Bola, Ijei, Ifeoma, Atoyebi, Wale, Gwani, Larai, Gani, Esther, Hsu, Lewis
Publicado 2018

SWIM (sickle with ibuprofen and morphine) randomised controlled trial fails to recruit: lessons learnt

por Cho, Gavin, Anie, Kofi A, Buckton, Jacky, Kiilu, Patricia, Layton, Mark, Alexander, Lydia, Hemmaway, Claire, Sutton, Dorothy, Amos, Claire, Doré, Caroline J, Kahan, Brennan, Meredith, Sarah
Publicado 2016

Organ damage in sickle cell disease study (ORDISS): protocol for a longitudinal cohort study based in Ghana

por Anie, Kofi A, Paintsil, Vivian, Owusu-Dabo, Ellis, Ansong, Daniel, Osei-Akoto, Alex, Ohene-Frempong, Kwaku, Amissah, Kofi Aikins, Addofoh, Nicholas, Ackah, Ezekiel Bonwin, Owusu-Ansah, Amma Twumwa, Ofori-Acquah, Solomon Fiifi
Publicado 2017

Development of multi-level standards of care recommendations for sickle cell disease: Experience from SickleInAfrica

por Paintsil, Vivian, Ally, Mwashungi, Isa, Hezekiah, Anie, Kofi A., Mgaya, Josephine, Nkanyemka, Malula, Nembaware, Victoria, Oppong-Mensah, Yaa Gyamfua, Ndobho, Flora, Chirande, Lulu, Makubi, Abel, Nnodu, Obiageli, Wonkam, Ambroise, Makani, Julie, Ohene-Frempong, Kwaku
Publicado 2023

Sickle Cell Disease Genomics of Africa (SickleGenAfrica) Network: ethical framework and initial qualitative findings from community engagement in Ghana, Nigeria and Tanzania

por Anie, Kofi A, Olayemi, Edeghonghon, Paintsil, Vivian, Owusu-Dabo, Ellis, Adeyemo, Titilope Adenike, Sani, Mahmoud U, Galadanci, Najibah Aliyu, Nnodu, Obiageli, Tluway, Furahini, Adjei, David Nana, Mensah, Peter, Sarfo-Antwi, Joseph, Nwokobia, Henry, Gambo, Awwal, Benjamin, Adebola, Salim, Arafa, Osae-Larbi, Judith A, Ofori-Acquah, Solomon Fiifi
Publicado 2021

Real-time national survey of COVID-19 in hemoglobinopathy and rare inherited anemia patients

por Telfer, Paul, de la Fuente, Josu, Sohal, Mamta, Brown, Ralph, Eleftheriou, Perla, Roy, Noémi, Piel, Frédéric B., Chakravorty, Subarna, Gardner, Kate, Velangi, Mark, Drasar, Emma, Shah, Farrukh, Porter, John B., Trompeter, Sara, Atoyebi, Wale, Szydlo, Richard, Anie, Kofi A., Ryan, Kate, Sharif, Joseph, Wright, Josh, Astwood, Emma, Nicolle, C. Sarah, Webster, Amy, Roberts, David J., Lugthart, Sanne, Kaya, Banu, Awogbade, Moji, Rees, David C., Hollingsworth, Rob, Inusa, Baba, Howard, Jo, Layton, D. Mark
Publicado 2020

Proceedings of a Sickle Cell Disease Ontology workshop — Towards the first comprehensive ontology for Sickle Cell Disease

por Mulder, Nicola, Nembaware, Victoria, Adekile, Adekunle, Anie, Kofi A., Inusa, Baba, Brown, Biobele, Campbell, Andrew, Chinenere, Furahini, Chunda-Liyoka, Catherine, Derebail, Vimal K., Geard, Amy, Ghedira, Kais, Hamilton, Carol M., Hanchard, Neil A., Haendel, Melissa, Huggins, Wayne, Ibrahim, Muntaser, Jupp, Simon, Kamga, Karen Kengne, Knight-Madden, Jennifer, Lopez-Sall, Philomène, Mbiyavanga, Mamana, Munube, Deogratias, Nirenberg, Damian, Nnodu, Obiageli, Ofori-Acquah, Solomon Fiifi, Ohene-Frempong, Kwaku, Opap, Kenneth Babu, Panji, Sumir, Park, Miriam, Pule, Gift, Royal, Charmaine, Sangeda, Raphael, Tayo, Bamidele, Treadwell, Marsha, Tshilolo, Léon, Wonkam, Ambroise
Publicado 2016

The Sickle Cell Disease Ontology: Enabling Collaborative Research and Co-Designing of New Planetary Health Applications

por Nembaware, Victoria, Mazandu, Gaston K., Hotchkiss, Jade, Safari Serufuri, Jean-Michel, Kent, Jill, Kengne, Andre Pascal, Anie, Kofi, Munung, Nchangwi Syntia, Bukini, Daima, Bitoungui, Valentina Josiane Ngo, Munube, Deogratias, Chirwa, Uzima, Chunda-Liyoka, Catherine, Jonathan, Agnes, Flor-Park, Miriam V., Esoh, Kevin Kum, Jonas, Mario, Mnika, Khuthala, Oosterwyk, Chandré, Masamu, Upendo, Morrice, Jack, Uwineza, Annette, Nguweneza, Arthemon, Banda, Kambe, Nyanor, Isaac, Adjei, David Nana, Siebu, Nathan Edward, Nkanyemka, Malula, Kuona, Patience, Tayo, Bamidele O., Campbell, Andrew, Oron, Assaf P., Nnodu, Obiageli E., Painstil, Vivian, Makani, Julie, Mulder, Nicola, Wonkam, Ambroise
Publicado 2020