Dataset on the psychosocial impact in families with children with developmental and epileptic encephalopathies

por Salom, Rafael, Aras, Luís Miguel, Piñero, Jessica, Duñabeitia, Jon Andoni
Publicado 2023

The psychosocial impact of caring for children with Dravet Syndrome

por Salom, Rafael, Aras, Luis Miguel, Piñero, Jessica, Duñabeitia, Jon Andoni
Publicado 2023

Validation of Childhood Rare Epilepsy Social Impact Assessment (CRESIA) to Measure the Social and Family Impact of Rare Childhood Diseases with Epilepsy

por Salom, Rafael, Aras, Luis Miguel, Piñero, Jessica, Duñabeitia, Jon Andoni
Publicado 2022

Analysis of endocannabinoid signaling elements and related proteins in lymphocytes of patients with Dravet syndrome

por Rubio, Marta, Valdeolivas, Sara, Piscitelli, Fabiana, Verde, Roberta, Satta, Valentina, Barroso, Eva, Montolio, Marisol, Aras, Luis Miguel, Di Marzo, Vincenzo, Sagredo, Onintza, Fernández‐Ruiz, Javier
Publicado 2016

The Charlotte Project: Recommendations for patient-reported outcomes and clinical parameters in Dravet syndrome through a qualitative and Delphi consensus study

por Aledo-Serrano, Ángel, Mingorance, Ana, Villanueva, Vicente, García-Peñas, Juan José, Gil-Nagel, Antonio, Boronat, Susana, Aibar, JoséÁngel, Cámara, Silvia, Yániz, María José, Aras, Luis Miguel, Blanco, Bárbara, Sánchez-Carpintero, Rocío
Publicado 2022