Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neuro...

por Post, Annemarie E. M., Klockgether, Thomas, Landwehrmeyer, G. Bernhard, Pandolfo, Massimo, Arnesen, Astri, Reinhard, Carola, Graessner, Holm
Publicado 2021

Monitoring and Managing Lifestyle Behaviors Using Wearable Activity Trackers: Mixed Methods Study of Views From the Huntington Disease Community

por Morgan-Jones, Philippa, Jones, Annabel, Busse, Monica, Mills, Laura, Pallmann, Philip, Drew, Cheney, Arnesen, Astri, Wood, Fiona
Publicado 2022

What we don't need to prove but need to do in multidisciplinary treatment and care in Huntington's disease: a position paper

por Mühlbӓck, Alzbeta, van Walsem, Marleen, Nance, Martha, Arnesen, Astri, Page, Kirsty, Fisher, Alexandra, van Kampen, Manon, Nuzzi, Angela, Limpert, Roy, Fossmo, Hanne Ludt, Cruickshank, Travis, Veenhuizen, Ruth
Publicado 2023

Perceptions about Research Participation among Individuals at Risk and Individuals with Premanifest Huntington’s Disease: A Survey Conducted by the European Huntington Association...

por Júlio, Filipa, Blanco, Ruth, Casanova, Josè Perez, D’Alessio, Barbara, De Schepper, Beatrice, De Sousa, Dina, De Sousa, Paul, Ferreira, Cristina, Gommans, Hans, Haselberg, Rob, Hermant, Emilie, Lis, Danuta, Maffi, Sabrina, Olsen, Svein Olaf, Papantoniou, Marios, Squitieri, Ferdinando, Tretyakova, Marina, Umakhanova, Zaynab, Václavík, Vladimír, Winkelmann, Michaela, Arnesen, Astri
Publicado 2021