Subcutaneous C1‐Inhibitor Concentrate for prophylaxis during pregnancy and lactation in a patient with C1‐INH‐HAE

por Andarawewa, Shimalee, Aygören‐Pürsün, Emel
Publicado 2021

Epidemiology of Bradykinin-mediated angioedema: a systematic investigation of epidemiological studies

por Aygören-Pürsün, Emel, Magerl, Markus, Maetzel, Andreas, Maurer, Marcus
Publicado 2018

On demand treatment and home therapy of hereditary angioedema in Germany - the Frankfurt experience

por Aygören-Pürsün, Emel, Martinez-Saguer, Inmaculada, Rusicke, Eva, Klingebiel, Thomas, Kreuz, Wolfhart
Publicado 2010

549 Management of Twenty-Five Pediatric Patients with Hereditary Angioedema (Hae) Undergoing Home Treatment—A Clinical Surveillance Program

por Martinez-Saguer, Inmaculada, Aygören-Pürsün, Emel, Rusicke, Eva, Klingebiel, Thomas, Kreuz, Wolfhart
Publicado 2012

Estimation of EuroQol 5-Dimensions health status utility values in hereditary angioedema

por Aygören-Pürsün, Emel, Bygum, Anette, Beusterien, Kathleen, Hautamaki, Emily, Sisic, Zlatko, Boysen, Henrik B, Caballero, Teresa
Publicado 2016

The hereditary angioedema burden of illness study in Europe (HAE-BOIS-Europe): background and methodology

por Bygum, Anette, Aygören-Pürsün, Emel, Caballero, Teresa, Beusterien, Kathleen, Gholizadeh, Shadi, Musingarimi, Patience, Wait, Suzanne, Boysen, Henrik
Publicado 2012

Socioeconomic burden of hereditary angioedema: results from the hereditary angioedema burden of illness study in Europe

por Aygören-Pürsün, Emel, Bygum, Anette, Beusterien, Kathleen, Hautamaki, Emily, Sisic, Zlatko, Wait, Suzanne, Boysen, Henrik B, Caballero, Teresa
Publicado 2014

Pharmacokinetics of plasma-derived C1-esterase inhibitor after subcutaneous versus intravenous administration in subjects with mild or moderate hereditary angioedema: the PASSION s...

por Martinez-Saguer, Inmaculada, Cicardi, Marco, Suffritti, Chiara, Rusicke, Eva, Aygören-Pürsün, Emel, Stoll, Hildegard, Rossmanith, Tanja, Feussner, Annette, Kalina, Uwe, Kreuz, Wolfhart
Publicado 2014

Clinical characteristics and burden of illness in patients with hereditary angioedema: findings from a multinational patient survey

por Mendivil, Joan, Murphy, Ryan, de la Cruz, Marie, Janssen, Ellen, Boysen, Henrik Balle, Jain, Gagan, Aygören-Pürsün, Emel, Hirji, Ishan, Devercelli, Giovanna
Publicado 2021

Attenuated androgen discontinuation in patients with hereditary angioedema: a commented case series

por Maurer, Marcus, Magerl, Markus, Aygören-Pürsün, Emel, Bork, Konrad, Farkas, Henriette, Longhurst, Hilary, Kiani‑Alikhan, Sorena, Bouillet, Laurence, Boccon-Gibod, Isabelle, Cancian, Mauro, Zanichelli, Andrea, Launay, David
Publicado 2022

Hereditary Angioedema Caused By C1-Esterase Inhibitor Deficiency: A Literature-Based Analysis and Clinical Commentary on Prophylaxis Treatment...

por Gower, Richard G, Busse, Paula J, Aygören-Pürsün, Emel, Barakat, Amin J, Caballero, Teresa, Davis-Lorton, Mark, Farkas, Henriette, Hurewitz, David S, Jacobs, Joshua S, Johnston, Douglas T, Lumry, William, Maurer, Marcus
Publicado 2011

A randomized trial of human C1 inhibitor prophylaxis in children with hereditary angioedema

por Aygören‐Pürsün, Emel, Soteres, Daniel F., Nieto‐Martinez, Sandra A., Christensen, Jim, Jacobson, Kraig W., Moldovan, Dumitru, Van Leerberghe, Arthur, Tang, Yongqiang, Lu, Peng, Vardi, Moshe, Schranz, Jennifer, Martinez‐Saguer, Inmaculada
Publicado 2019

Evaluation of patient‐reported outcome measures for on‐demand treatment of hereditary angioedema attacks and design of KONFIDENT, a phase 3 trial of sebetralstat

por Cohn, Danny M., Aygören‐Pürsün, Emel, Bernstein, Jonathan A., Farkas, Henriette, Lumry, William R., Maurer, Marcus, Zanichelli, Andrea, Iverson, Matthew, Hao, James, Smith, Michael D., Yea, Christopher M., Audhya, Paul K., Riedl, Marc A.
Publicado 2023

HAE international home therapy consensus document

por Longhurst, Hilary J, Farkas, Henriette, Craig, Timothy, Aygören-Pürsün, Emel, Bethune, Claire, Bjorkander, Janne, Bork, Konrad, Bouillet, Laurence, Boysen, Henrik, Bygum, Anette, Caballero, Teresa, Cicardi, Marco, Dempster, John, Gompels, Mark, Gooi, Jimmy, Grigoriadou, Sofia, Huffer, Ursula, Kreuz, Wolfhart, Levi, Marcel M, Long, Janet, Martinez-Saguer, Inmaculada, Raguet, Michel, Reshef, Avner, Bowen, Tom, Zuraw, Bruce
Publicado 2010

Long‐term safety and effectiveness of berotralstat for hereditary angioedema: The open‐label APeX‐S study

por Farkas, Henriette, Stobiecki, Marcin, Peter, Jonny, Kinaciyan, Tamar, Maurer, Marcus, Aygören‐Pürsün, Emel, Kiani‐Alikhan, Sorena, Wu, Adrian, Reshef, Avner, Bygum, Anette, Fain, Olivier, Hagin, David, Huissoon, Aarnoud, Jeseňák, Miloš, Lindsay, Karen, Panovska, Vesna Grivcheva, Steiner, Urs C., Zubrinich, Celia, Best, Jessica M., Cornpropst, Melanie, Dix, Daniel, Dobo, Sylvia M., Iocca, Heather A., Desai, Bhavisha, Murray, Sharon C., Nagy, Eniko, Sheridan, William P.
Publicado 2021

Canadian hereditary angioedema guideline

por Betschel, Stephen, Badiou, Jacquie, Binkley, Karen, Hébert, Jacques, Kanani, Amin, Keith, Paul, Lacuesta, Gina, Yang, Bill, Aygören-Pürsün, Emel, Bernstein, Jonathan, Bork, Konrad, Caballero, Teresa, Cicardi, Marco, Craig, Timothy, Farkas, Henriette, Longhurst, Hilary, Zuraw, Bruce, Boysen, Henrik, Borici-Mazi, Rozita, Bowen, Tom, Dallas, Karen, Dean, John, Lang-Robertson, Kelly, Laramée, Benoît, Leith, Eric, Mace, Sean, McCusker, Christine, Moote, Bill, Poon, Man-Chiu, Ritchie, Bruce, Stark, Donald, Sussman, Gordon, Waserman, Susan
Publicado 2014

The International/Canadian Hereditary Angioedema Guideline

por Betschel, Stephen, Badiou, Jacquie, Binkley, Karen, Borici-Mazi, Rozita, Hébert, Jacques, Kanani, Amin, Keith, Paul, Lacuesta, Gina, Waserman, Susan, Yang, Bill, Aygören-Pürsün, Emel, Bernstein, Jonathan, Bork, Konrad, Caballero, Teresa, Cicardi, Marco, Craig, Timothy, Farkas, Henriette, Grumach, Anete, Katelaris, Connie, Longhurst, Hilary, Riedl, Marc, Zuraw, Bruce, Berger, Magdelena, Boursiquot, Jean-Nicolas, Boysen, Henrik, Castaldo, Anthony, Chapdelaine, Hugo, Connors, Lori, Fu, Lisa, Goodyear, Dawn, Haynes, Alison, Kamra, Palinder, Kim, Harold, Lang-Robertson, Kelly, Leith, Eric, McCusker, Christine, Moote, Bill, O’Keefe, Andrew, Othman, Ibraheem, Poon, Man-Chiu, Ritchie, Bruce, St-Pierre, Charles, Stark, Donald, Tsai, Ellie
Publicado 2019

Correction to: The International/Canadian Hereditary Angioedema Guideline

por Betschel, Stephen, Badiou, Jacquie, Binkley, Karen, Borici-Mazi, Rozita, Hébert, Jacques, Kanani, Amin, Keith, Paul, Lacuesta, Gina, Waserman, Susan, Yang, Bill, Aygören-Pürsün, Emel, Bernstein, Jonathan, Bork, Konrad, Caballero, Teresa, Cicardi, Marco, Craig, Timothy, Farkas, Henriette, Grumach, Anete, Katelaris, Connie, Longhurst, Hilary, Riedl, Marc, Zuraw, Bruce, Berger, Magdelena, Boursiquot, Jean-Nicolas, Boysen, Henrik, Castaldo, Anthony, Chapdelaine, Hugo, Connors, Lori, Fu, Lisa, Goodyear, Dawn, Haynes, Alison, Kamra, Palinder, Kim, Harold, Lang-Robertson, Kelly, Leith, Eric, McCusker, Christine, Moote, Bill, O’Keefe, Andrew, Othman, Ibraheem, Poon, Man-Chiu, Ritchie, Bruce, St-Pierre, Charles, Stark, Donald, Tsai, Ellie
Publicado 2020

Hereditary and acquired angioedema: Problems and progress: Proceedings of the third C1 esterase inhibitor deficiency workshop and beyond

por Agostoni, Angelo, Aygören-Pürsün, Emel, Binkley, Karen E., Blanch, Alvaro, Bork, Konrad, Bouillet, Laurence, Bucher, Christoph, Castaldo, Anthony J, Cicardi, Marco, Davis, Alvin E, De Carolis, Caterina, Drouet, Christian, Duponchel, Christiane, Farkas, Henriette, Fáy, Kálmán, Fekete, Béla, Fischer, Bettina, Fontana, Luigi, Füst, George, Giacomelli, Roberto, Gröner, Albrecht, Erik Hack, C., Harmat, George, Jakenfelds, John, Juers, Mathias, Kalmár, Lajos, Kaposi, Pál N., Karádi, István, Kitzinger, Arianna, Kollár, Tímea, Kreuz, Wolfhart, Lakatos, Peter, Longhurst, Hilary J., Lopez-Trascasa, Margarita, Martinez-Saguer, Inmaculada, Monnier, Nicole, Nagy, István, Németh, Éva, Nielsen, Erik Waage, Nuijens, Jan H., O'Grady, Caroline, Pappalardo, Emanuela, Penna, Vincenzo, Perricone, Carlo, Perricone, Roberto, Rauch, Ursula, Roche, Olga, Rusicke, Eva, Späth, Peter J, Szendei, George, Takács, Edit, Tordai, Attila, Truedsson, Lennart, Varga, Lilian, Visy, Beáta, Williams, Kayla, Zanichelli, Andrea, Zingale, Lorenza
Publicado 2004

The international WAO/EAACI guideline for the management of hereditary angioedema – The 2021 revision and update

por Maurer, Marcus, Magerl, Markus, Betschel, Stephen, Aberer, Werner, Ansotegui, Ignacio J., Aygören-Pürsün, Emel, Banerji, Aleena, Bara, Noémi-Anna, Boccon-Gibod, Isabelle, Bork, Konrad, Bouillet, Laurence, Boysen, Henrik Balle, Brodszki, Nicholas, Busse, Paula J., Bygum, Anette, Caballero, Teresa, Cancian, Mauro, Castaldo, Anthony J., Cohn, Danny M., Csuka, Dorottya, Farkas, Henriette, Gompels, Mark, Gower, Richard, Grumach, Anete S., Guidos-Fogelbach, Guillermo, Hide, Michihiro, Kang, Hye-Ryun, Kaplan, Allen P., Katelaris, Constance H., Kiani-Alikhan, Sorena, Lei, Wei-Te, Lockey, Richard F., Longhurst, Hilary, Lumry, William, MacGinnitie, Andrew, Malbran, Alejandro, Martinez Saguer, Inmaculada, Matta Campos, Juan José, Nast, Alexander, Nguyen, Dinh, Nieto-Martinez, Sandra A., Pawankar, Ruby, Peter, Jonathan, Porebski, Grzegorz, Prior, Nieves, Reshef, Avner, Riedl, Marc, Ritchie, Bruce, Sheikh, Farrukh Rafique, Smith, William B., Spaeth, Peter J., Stobiecki, Marcin, Toubi, Elias, Varga, Lilian Agnes, Weller, Karsten, Zanichelli, Andrea, Zhi, Yuxiang, Zuraw, Bruce, Craig, Timothy
Publicado 2022