Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosa

por Popenhagen, Mark P., Genovese, Paola, Blishen, Mo, Rajapakse, Dilini, Diem, Anja, King, Alex, Chan, Jennifer, Pellicer Arasa, Eduard, Baird, Simone, Ferreira da Rocha, Anna Carolina, Stitt, Gideon, Badger, Kellie, Zmazek, Vlasta, Ambreen, Faiza, Mackenzie, Caroline, Price, Harper, Roberts, Toni, Moore, Zena, Patton, Declan, Murphy, Paul, Mayre-Chilton, Kattya
Publicado 2023