Measuring the Patient Experience in Rare Disorders: Benefit of Pragmatic Mixed-Methods Research in NUT Carcinoma

por Ciesluk, Anna, Voorhaar, Maarten, Barrett, Louise, Baldasaro, Jessica, Griebsch, Ingolf, Marquis, Patrick
Publicado 2022

Development and Preliminary Validation of an Instrument to Measure Symptoms and Impacts in Patients with Proliferative Diabetic Retinopathy

por Rofail, Diana, Sherman, Steven, Hartford, Christopher, Levine, Adele, Baldasaro, Jessica, Marquis, Patrick, Rao, Rohini, Do, Diana V.
Publicado 2023

The Patient Experience with Diabetic Retinopathy: Qualitative Analysis of Patients with Proliferative Diabetic Retinopathy

por Sherman, Steven A., Rofail, Diana, Levine, Adele, Hartford, Christopher R., Baldasaro, Jessica, Marquis, Patrick, Rao, Rohini, Do, Diana V.
Publicado 2022

“I Can’t Take off My Shirt or Do My Own Hair”—A Qualitative Investigation of the Symptoms and Impact Experience of Children and Adolescents with Fibrodysplasia Ossificans Progressi...

por Markowitz, Jessica T., Rofail, Diana, Vandenberg, Gerrit, Baldasaro, Jessica, Sanchez, Robert J., Pignolo, Robert J., Keen, Richard, Davis, Michelle, Marquis, Patrick
Publicado 2022

Development of a Conceptual Model of the Patient Experience in Small Cell Lung Cancer: A Qualitative Interview Study

por Altman, Danielle E., Zhang, Xinke, Fu, An-Chen, Rams, Alissa R., Baldasaro, Jessica A., Ahmad, Samir Ali, Schlichting, Michael, Marquis, Patrick, Benincasa, Elena, Moulin, Camilo, Pawar, Vivek
Publicado 2023