The Perceived Influence of Neurofibromatosis Type 1(NF1) on the Parents’ Relationship

por Wiener, Lori, Bedoya, Sima Zadeh, Goyal, Archita, Gordon, Mallorie, Deuitch, Natalie, Widemann, Brigitte
Publicado 2023

Psychosocial Characteristics and Experiences in Patients with Multiple Endocrine Neoplasia Type 2 (MEN2) and Medullary Thyroid Carcinoma (MTC)

por Lockridge, Robin, Bedoya, Sima, Allen, Taryn, Widemann, Brigitte C., Akshintala, Srivandana, Glod, John, Wiener, Lori
Publicado 2022

The Needs of Adolescents and Young Adults with Chronic Illness: Results of a Quality Improvement Survey

por Allen, Taryn, Reda, Stephanie, Martin, Staci, Long, Phoebe, Franklin, Alexis, Bedoya, Sima Zadeh, Wiener, Lori, Wolters, Pamela L.
Publicado 2022

Adolescent and Young Adult Initiated Discussions of Advance Care Planning: Family Member, Friend and Health Care Provider Perspectives

por Bedoya, Sima Z., Fry, Abigail, Gordon, Mallorie L., Lyon, Maureen E., Thompkins, Jessica, Fasciano, Karen, Malinowski, Paige, Heath, Corey, Sender, Leonard, Zabokrtsky, Keri, Pao, Maryland, Wiener, Lori
Publicado 2022