An observational cohort study on impact, dimensions and outcome of perceived fatigue in adult 5q-spinal muscular atrophy patients receiving nusinersen treatment

por Binz, Camilla, Schreiber-Katz, Olivia, Kumpe, Mareike, Ranxha, Gresa, Siegler, Hannah, Wieselmann, Gary, Petri, Susanne, Osmanovic, Alma
Publicado 2020

Treatment expectations and patient-reported outcomes of nusinersen therapy in adult spinal muscular atrophy

por Osmanovic, Alma, Ranxha, Gresa, Kumpe, Mareike, Müschen, Lars, Binz, Camilla, Wiehler, Flavia, Paracka, Lejla, Körner, Sonja, Kollewe, Katja, Petri, Susanne, Schreiber-Katz, Olivia
Publicado 2020

Cerebrospinal Fluid Parameters in Antisense Oligonucleotide-Treated Adult 5q-Spinal Muscular Atrophy Patients

por Müschen, Lars Hendrik, Osmanovic, Alma, Binz, Camilla, Jendretzky, Konstantin F., Ranxha, Gresa, Bronzlik, Paul, Abu-Fares, Omar, Wiehler, Flavia, Möhn, Nora, Hümmert, Martin W., Gingele, Stefan, Götz, Friedrich, Stangel, Martin, Skripuletz, Thomas, Schreiber-Katz, Olivia, Petri, Susanne
Publicado 2021

Treatment satisfaction in 5q-spinal muscular atrophy under nusinersen therapy

por Osmanovic, Alma, Ranxha, Gresa, Kumpe, Mareike, Wurster, Claudia D., Stolte, Benjamin, Cordts, Isabell, Günther, René, Freigang, Maren, Müschen, Lars H., Binz, Camilla, Hermann, Andreas, Deschauer, Marcus, Lingor, Paul, Ludolph, Albert C., Hagenacker, Tim, Schreiber-Katz, Olivia, Petri, Susanne
Publicado 2021

Validity and reliability of the German multidimensional fatigue inventory in spinal muscular atrophy

por Binz, Camilla, Osmanovic, Alma, Thomas, Nele H., Stolte, Benjamin, Freigang, Maren, Cordts, Isabell, Griep, Ramona, Uzelac, Zeljko, Wurster, Claudia D., Kamm, Christoph, Siegler, Hannah A., Wieselmann, Gary, Hermann, Andreas, Lingor, Paul, Deschauer, Marcus, Ludolph, Albert C., Meyer, Thomas, Günther, René, Hagenacker, Tim, Petri, Susanne, Schreiber‐Katz, Olivia
Publicado 2022

Informal Caregiving in Amyotrophic Lateral Sclerosis (ALS): A High Caregiver Burden and Drastic Consequences on Caregivers’ Lives

por Schischlevskij, Pavel, Cordts, Isabell, Günther, René, Stolte, Benjamin, Zeller, Daniel, Schröter, Carsten, Weyen, Ute, Regensburger, Martin, Wolf, Joachim, Schneider, Ilka, Hermann, Andreas, Metelmann, Moritz, Kohl, Zacharias, Linker, Ralf A., Koch, Jan Christoph, Stendel, Claudia, Müschen, Lars H., Osmanovic, Alma, Binz, Camilla, Klopstock, Thomas, Dorst, Johannes, Ludolph, Albert C., Boentert, Matthias, Hagenacker, Tim, Deschauer, Marcus, Lingor, Paul, Petri, Susanne, Schreiber-Katz, Olivia
Publicado 2021