Public preferences for the return of research results in genetic research: A conjoint analysis

por Bollinger, Juli, Bridges, John F P, Mohamed, Ateesha, Kaufman, David
Publicado 2014

Patients' perspectives on the derivation and use of organoids

por Bollinger, Juli, May, Elizabeth, Mathews, Debra, Donowitz, Mark, Sugarman, Jeremy
Publicado 2021

Risk perception before and after presymptomatic genetic testing for Huntington's disease: Not always what one might expect

por Stuttgen, Kelsey, Dvoskin, Rachel, Bollinger, Juli, McCague, Allison, Shpritz, Barnett, Brandt, Jason, Mathews, Debra
Publicado 2018

Constraints on gene patent protection fuel secrecy concerns: a qualitative study

por Guerrini, Christi J, McGuire, Amy L, Majumder, Mary A, Bollinger, Juli M, Rowan, Paul J
Publicado 2017

A scoping review of genetics and genomics research ethics policies and guidelines for Africa

por Ali, Joseph, Cohn, Betty, Mwaka, Erisa, Bollinger, Juli M., Kwagala, Betty, Barugahare, John, Sewankambo, Nelson K., Ochieng, Joseph
Publicado 2021

Stakeholder perspectives regarding pragmatic clinical trial collateral findings

por Morain, Stephanie R., Mathews, Debra J. H., Weinfurt, Kevin, May, Elizabeth, Bollinger, Juli M., Geller, Gail, Sugarman, Jeremy
Publicado 2020

Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi

por Robinson, Jill O, Daoud, Amira, Geary, Janis, Rahimzadeh, Vasiliki, Bollinger, Juli, Guerrini, Christi J, Cook-Deegan, Robert, McGuire, Amy L, Majumder, Mary A
Publicado 2023

Patients’ Reactions to Letters Communicating Collateral Findings of Pragmatic Clinical Trials: a National Web-Based Survey

por Weinfurt, Kevin P., Bollinger, Juli M., May, Elizabeth, Geller, Gail, Mathews, Debra J. H., Morain, Stephanie R., Schmid, Lorrie, Bloom, Diane L., Sugarman, Jeremy
Publicado 2021

Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation

por Majumder, Mary A., Blank, Matthew L., Geary, Janis, Bollinger, Juli M., Guerrini, Christi J., Robinson, Jill Oliver, Canfield, Isabel, Cook-Deegan, Robert, McGuire, Amy L.
Publicado 2021

Fresh takes on five health data sharing domains: Quality, privacy, equity, incentives, and sustainability

por Guerrini, Christi J., Majumder, Mary A., Robinson, Jill O., Cook-Deegan, Robert, Blank, Matthew, Bollinger, Juli, Geary, Janis, Gutierrez, Amanda M., Shrikant, Maya, McGuire, Amy L.
Publicado 2023

Barriers to clinical adoption of next generation sequencing: Perspectives of a policy Delphi panel

por Messner, Donna A., Al Naber, Jennifer, Koay, Pei, Cook-Deegan, Robert, Majumder, Mary, Javitt, Gail, Deverka, Patricia, Dvoskin, Rachel, Bollinger, Juli, Curnutte, Margaret, Chandrasekharan, Subhashini, McGuire, Amy
Publicado 2016