“Patient Journeys”: improving care by patient involvement

por Bolz-Johnson, Matt, Meek, Jelena, Hoogerbrugge, Nicoline
Publicado 2019

Together4RD position statement on collaboration between European reference networks and industry

por Hedley, Victoria, Bolz-Johnson, Matt, Hernando, Ines, Kenward, Rosalind, Nabbout, Rima, Romero, Clara, Schaefer, Franz, Upadhyaya, Sheela
Publicado 2023

Patient journey experiences may contribute to improve healthcare for patients with rare endocrine diseases

por Webb, Susan M, Kristensen, Jette, Nordenström, Anna, Vitali, Diana, Amodru, Vincent, Wiehe, Lenja Katharina, Bolz-Johnson, Matt
Publicado 2022