Development and validation of the living with pulmonary hypertension questionnaire in pulmonary arterial hypertension patients

por Bonner, Nicola, Abetz, Linda, Meunier, Juliette, Sikirica, Mirko, Mathai, Stephen C
Publicado 2013

Development and validation of the angiotensin-converting enzyme inhibitor (ACEI) induced angioedema investigator rating scale and proposed discharge criteria

por Bonner, Nicola, Panter, Charlotte, Kimura, Alan, Sinert, Rich, Moellman, Joseph, Bernstein, Jonathan A.
Publicado 2017

Japanese and French translation and linguistic validation of a patient-reported outcome tool to assess quality of life in patients with Immune Thrombocytopenia (ITP): the ITP Life...

por Tomiyama, Yoshiaki, Cheze, Stèphane, Grant, Laura, Bonner, Nicola, Affinito, Sylvain, Nagano, Mitsuhiro, Rajput, Tanvi, Viana, Ricardo
Publicado 2022

Development and content validity testing of a patient-reported outcomes questionnaire for the assessment of hereditary angioedema in observational studies

por Bonner, Nicola, Abetz-Webb, Linda, Renault, Lydie, Caballero, Teresa, Longhurst, Hilary, Maurer, Marcus, Christiansen, Sandra, Zuraw, Bruce
Publicado 2015

Estimation of minimally important differences and responder definitions for EORTC QLQ‐MY20 scores in multiple myeloma patients

por Sully, Kate, Trigg, Andrew, Bonner, Nicola, Moreno‐Koehler, Alejandro, Trennery, Claire, Shah, Nina, Yucel, Emre, Panjabi, Sumeet, Cocks, Kim
Publicado 2019

Qualitative Assessment of the Symptoms and Impact of Pancreatic Exocrine Insufficiency (PEI) to Inform the Development of a Patient-Reported Outcome (PRO) Instrument

por Johnson, Colin D., Arbuckle, Rob, Bonner, Nicola, Connett, Gary, Dominguez-Munoz, Enrique, Levy, Philippe, Staab, Doris, Williamson, Nicola, Lerch, Markus M.
Publicado 2017

Development and equivalence of new faces for inclusion in the Childhood Asthma Control Test (C-ACT) response scale

por Sully, Kate, Bonner, Nicola, Bradley, Helena, von Maltzahn, Robyn, Arbuckle, Rob, Walker-Nthenda, Louise, Mahon, Aoife, Becker, Brandon, O’Hara, Louise, Bevans, Katherine B., Kosinski, Mark, Zeiger, Robert S., Mackenzie, Ross, Nelsen, Linda
Publicado 2021

Development and validation of Gaucher disease type 1 (GD1)-specific patient-reported outcome measures (PROMs) for clinical monitoring and for clinical trials

por Elstein, Deborah, Belmatoug, Nadia, Deegan, Patrick, Göker-Alpan, Özlem, Hughes, Derralynn A., Schwartz, Ida Vanessa D., Weinreb, Neal, Bonner, Nicola, Panter, Charlotte, Fountain, Donna, Lenny, Andrew, Longworth, Louise, Miller, Rachael, Shah, Koonal, Schenk, Jörn, Sen, Rohini, Zimran, Ari
Publicado 2022