Understanding side effects of therapy for myasthenia gravis and their impact on daily life

por Bacci, Elizabeth Dansie, Coyne, Karin S., Poon, Jiat-Ling, Harris, Linda, Boscoe, Audra N.
Publicado 2019

Impact of Refractory Myasthenia Gravis on Health-Related Quality of Life

por Boscoe, Audra N., Xin, Haichang, L'Italien, Gilbert J., Harris, Linda A., Cutter, Gary R.
Publicado 2019

Prevalence of pyruvate kinase deficiency: A systematic literature review

por Secrest, Matthew H., Storm, Mike, Carrington, Courtney, Casso, Deborah, Gilroy, Keely, Pladson, Leanne, Boscoe, Audra N.
Publicado 2020

Development of the pyruvate kinase deficiency diary and pyruvate kinase deficiency impact assessment: Disease‐specific assessments

por Salek, Sam, Boscoe, Audra N., Piantedosi, Sarah, Egan, Shayna, Evans, Christopher J, Wells, Ted, Cohen, Jennifer, Klaassen, Robert J., Grace, Rachael, Storm, Michael
Publicado 2020

Psychometric validation of the Pyruvate Kinase Deficiency Diary and Pyruvate Kinase Deficiency Impact Assessment in adults in the phase 3 ACTIVATE trial

por Andrae, David A., Grace, Rachael F., Jewett, Adrian, Foster, Brandon, Klaassen, Robert J., Salek, Sam, Li, Junlong, Tai, Feng, Boscoe, Audra N., Zagadailov, Erin
Publicado 2023

The Pyruvate Kinase Deficiency Global Longitudinal (Peak) Registry: rationale and study design

por Grace, Rachael F, van Beers, Eduard J, Vives Corrons, Joan-Lluis, Glader, Bertil, Glenthøj, Andreas, Kanno, Hitoshi, Kuo, Kevin H M, Lander, Carl, Layton, D Mark, Pospíŝilová, Dagmar, Viprakasit, Vip, Li, Junlong, Yan, Yan, Boscoe, Audra N, Bowden, Chris, Bianchi, Paola
Publicado 2023

Comorbidities and complications in adults with pyruvate kinase deficiency

por Boscoe, Audra N., Yan, Yan, Hedgeman, Elizabeth, van Beers, Eduard J., Al‐Samkari, Hanny, Barcellini, Wilma, Eber, Stefan W., Glader, Bertil, Yaish, Hassan M., Chonat, Satheesh, Sharma, Mukta, Kuo, Kevin H. M., Neufeld, Ellis J., Wang, Heng, Verhovsek, Madeleine, Sheth, Sujit, Grace, Rachael F.
Publicado 2021