Challenges and positive impact of rare cancer caregiving: A mixed-methods study of caregivers of patients with Erdheim-Chester disease and other histiocytic neoplasms

por Mitchell, Hannah-Rose, Applebaum, Allison J., Lynch, Kathleen A., Reiner, Anne S., Atkinson, Thomas M., Buthorn, Justin J., Sigler, Allison S., Bossert, Dana, Brewer, Kathleen, Corkran, Jessica, Fournier, Deanna, Panageas, Katherine S., Diamond, Eli L.
Publicado 2022

Dyadic communication in rare cancer: a registry-based study of patients with Erdheim-Chester disease and their caregivers

por Reiner, Anne S., Applebaum, Allison J., Bossert, Dana, Buthorn, Justin J., Sigler, Allison M., Fournier, Deanna, Brewer, Kathleen, Atkinson, Thomas M., Lynch, Kathleen A., Gilliland, Jaime, Mao, Jun J., Panageas, Katherine S., Diamond, Eli L.
Publicado 2023

Patient-reported fatigue and pain in Erdheim-Chester disease: a registry-based, mixed methods study

por Reiner, Anne S., Bossert, Dana, Buthorn, Justin J., Sigler, Allison M., Gonen, Selin, Fournier, Deanna, Brewer, Kathleen, Corkran, Jessica, Goyal, Gaurav, Allen, Carl E., McClain, Kenneth L., Atkinson, Thomas M., Lynch, Kathleen A., Mao, Jun J., Panageas, Katherine S., Diamond, Eli L.
Publicado 2022