Patient and interest organizations’ views on personalized medicine: a qualitative study

por Budin-Ljøsne, Isabelle, Harris, Jennifer R.
Publicado 2016

A human rights approach to an international code of conduct for genomic and clinical data sharing

por Knoppers, Bartha M., Harris, Jennifer R., Budin-Ljøsne, Isabelle, Dove, Edward S.
Publicado 2014

Bridging consent: from toll bridges to lift bridges?

por Budin-Ljøsne, Isabelle, Tassé, Anne Marie, Knoppers, Bartha Maria, Harris, Jennifer R
Publicado 2011

Genotype-driven recruitment: a strategy whose time has come?

por Budin-Ljøsne, Isabelle, Soye, Kaitlin J, Tassé, Anne Marie, Knoppers, Bartha Maria, Harris, Jennifer R
Publicado 2013

Towards a data sharing Code of Conduct for international genomic research

por Knoppers, Bartha Maria, Harris, Jennifer R, Tassé, Anne Marie, Budin-Ljøsne, Isabelle, Kaye, Jane, Deschênes, Mylène, Zawati, Ma'n H
Publicado 2011

Data sharing in large research consortia: experiences and recommendations from ENGAGE

por Budin-Ljøsne, Isabelle, Isaeva, Julia, Maria Knoppers, Bartha, Marie Tassé, Anne, Shen, Huei-yi, McCarthy, Mark I, Harris, Jennifer R
Publicado 2014

Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research

por Goisauf, Melanie, Martin, Gillian, Bentzen, Heidi Beate, Budin-Ljøsne, Isabelle, Ursin, Lars, Durnová, Anna, Leitsalu, Liis, Smith, Katharine, Casati, Sara, Lavitrano, Marialuisa, Mascalzoni, Deborah, Boeckhout, Martin, Mayrhofer, Michaela Th.
Publicado 2019

Correction: Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research

por Goisauf, Melanie, Martin, Gillian, Bentzen, Heidi Beate, Budin-Ljøsne, Isabelle, Ursin, Lars, Durnová, Anna, Leitsalu, Liis, Smith, Katharine, Casati, Sara, Lavitrano, Marialuisa, Mascalzoni, Deborah, Boeckhout, Martin, Mayrhofer, Michaela Th
Publicado 2019

Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?

por Budin-Ljøsne, Isabelle, Mascalzoni, Deborah, Soini, Sirpa, Machado, Helena, Kaye, Jane, Bentzen, Heidi Beate, Rial-Sebbag, Emmanuelle, D'Abramo, Flavio, Witt, Michał, Schamps, Geneviève, Katić, Višnja, Krajnovic, Dusanca, Harris, Jennifer R.
Publicado 2016

A practical checklist for return of results from genomic research in the European context

por Vears, Danya F., Hallowell, Nina, Bentzen, Heidi Beate, Ellul, Bridget, Nøst, Therese Haugdahl, Kerasidou, Angeliki, Kerr, Shona M., Th. Mayrhofer, Michaela, Mežinska, Signe, Ormondroyd, Elizabeth, Solberg, Berge, Sand, Birgitte Wirum, Budin-Ljøsne, Isabelle
Publicado 2023

Dynamic Consent: a potential solution to some of the challenges of modern biomedical research

por Budin-Ljøsne, Isabelle, Teare, Harriet J. A., Kaye, Jane, Beck, Stephan, Bentzen, Heidi Beate, Caenazzo, Luciana, Collett, Clive, D’Abramo, Flavio, Felzmann, Heike, Finlay, Teresa, Javaid, Muhammad Kassim, Jones, Erica, Katić, Višnja, Simpson, Amy, Mascalzoni, Deborah
Publicado 2017

The challenges of the expanded availability of genomic information: an agenda-setting paper

por Borry, Pascal, Bentzen, Heidi Beate, Budin-Ljøsne, Isabelle, Cornel, Martina C., Howard, Heidi Carmen, Feeney, Oliver, Jackson, Leigh, Mascalzoni, Deborah, Mendes, Álvaro, Peterlin, Borut, Riso, Brigida, Shabani, Mahsa, Skirton, Heather, Sterckx, Sigrid, Vears, Danya, Wjst, Matthias, Felzmann, Heike
Publicado 2017

Are People Ready for Personalized Brain Health? Perspectives of Research Participants in the Lifebrain Consortium

por Friedman, Barbara Bodorkos, Suri, Sana, Solé-Padullés, Cristina, Düzel, Sandra, Drevon, Christian A, Baaré, William F C, Bartrés-Faz, David, Fjell, Anders M, Johansen-Berg, Heidi, Madsen, Kathrine S, Nyberg, Lars, Penninx, Brenda W J H, Sexton, Claire, Walhovd, Kristine B, Zsoldos, Enikő, Budin-Ljøsne, Isabelle
Publicado 2020

Return of individual research results from genomic research: A systematic review of stakeholder perspectives

por Vears, Danya F., Minion, Joel T., Roberts, Stephanie J., Cummings, James, Machirori, Mavis, Blell, Mwenza, Budin-Ljøsne, Isabelle, Cowley, Lorraine, Dyke, Stephanie O. M., Gaff, Clara, Green, Robert, Hall, Alison, Johns, Amber L., Knoppers, Bartha M., Mulrine, Stephanie, Patch, Christine, Winkler, Eva, Murtagh, Madeleine J.
Publicado 2021

Stakeholder engagement in European brain research: Experiences of the Lifebrain consortium

por Budin‐Ljøsne, Isabelle, Friedman, Barbara B., Baaré, William F. C., Bartrés‐Faz, David, Carver, Rebecca B., Drevon, Christian A., Ebmeier, Klaus P., Fjell, Anders M., Ghisletta, Paolo, Henson, Richard N., Kievit, Rogier, Madsen, Kathrine S., Nawijn, Laura, Suri, Sana, Solé‐Padullés, Cristina, Walhovd, Kristine B., Zsoldos, Enikő
Publicado 2023

Including all voices in international data-sharing governance

por Kaye, Jane, Terry, Sharon F., Juengst, Eric, Coy, Sarah, Harris, Jennifer R., Chalmers, Don, Dove, Edward S., Budin-Ljøsne, Isabelle, Adebamowo, Clement, Ogbe, Emilomo, Bezuidenhout, Louise, Morrison, Michael, Minion, Joel T., Murtagh, Madeleine J., Minari, Jusaku, Teare, Harriet, Isasi, Rosario, Kato, Kazuto, Rial-Sebbag, Emmanuelle, Marshall, Patricia, Koenig, Barbara, Cambon-Thomsen, Anne
Publicado 2018

People's interest in brain health testing: Findings from an international, online cross-sectional survey

por Carver, Rebecca B., Fredheim, Nanna Alida Grit, Mowinckel, Athanasia Monika, Ebmeier, Klaus P., Friedman, Barbara Bodorkos, Rosness, Tor Atle, Drevon, Christian A., Suri, Sana, Baaré, William F. C., Zsoldos, Eniko, Solé-Padullés, Cristina, Bartrés-Faz, David, Ghisletta, Paolo, Nawijn, Laura, Düzel, Sandra, Madsen, Kathrine Skak, Fjell, Anders M., Lindenberger, Ulman, Walhovd, Kristine B., Budin-Ljøsne, Isabelle
Publicado 2022

Toward a roadmap in global biobanking for health

por Harris, Jennifer R, Burton, Paul, Knoppers, Bartha Maria, Lindpaintner, Klaus, Bledsoe, Marianna, Brookes, Anthony J, Budin-Ljøsne, Isabelle, Chisholm, Rex, Cox, David, Deschênes, Mylène, Fortier, Isabel, Hainaut, Pierre, Hewitt, Robert, Kaye, Jane, Litton, Jan-Eric, Metspalu, Andres, Ollier, Bill, Palmer, Lyle J, Palotie, Aarno, Pasterk, Markus, Perola, Markus, Riegman, Peter H J, van Ommen, Gert-Jan, Yuille, Martin, Zatloukal, Kurt
Publicado 2012

Public perceptions of brain health: an international, online cross-sectional survey

por Budin-Ljøsne, Isabelle, Mowinckel, Athanasia Monika, Friedman, Barbara Bodorkos, Ebmeier, Klaus P, Drevon, Christian A, Carver, Rebecca Bruu, Zsoldos, Enikő, Fredheim, Nanna Alida Grit, Sørensen, Øystein, Baaré, William Frans Christiaan, Madsen, Kathrine Skak, Fjell, Anders M, Kievit, Rogier A, Ghisletta, Paolo, Bartrés-Faz, David, Nawijn, Laura, Solé-Padullés, Cristina, Walhovd, Kristine B, Düzel, Sandra, Zasyekina, Larisa, Iulita, Maria Florencia, Ferretti, Maria Teresa
Publicado 2022

The Global Brain Health Survey: Development of a Multi-Language Survey of Public Views on Brain Health

por Budin-Ljøsne, Isabelle, Friedman, Barbara Bodorkos, Suri, Sana, Solé-Padullés, Cristina, Düzel, Sandra, Drevon, Christian A., Baaré, William F. C., Mowinckel, Athanasia Monika, Zsoldos, Enikő, Madsen, Kathrine Skak, Carver, Rebecca Bruu, Ghisletta, Paolo, Arnesen, Mari R., Bartrés Faz, David, Brandmaier, Andreas M., Fjell, Anders Martin, Kvalbein, Aud, Henson, Richard N., Kievit, Rogier A., Nawijn, Laura, Pochet, Roland, Schnitzler, Alfons, Walhovd, Kristine B., Zasiekina, Larysa
Publicado 2020