Survey response burden in caregivers of civilians and service members/veterans with traumatic brain injury

por Hahn, Elizabeth A, Ianni, Phillip A, Hanks, Robin A, Miner, Jennifer A, Freedman, Jenna, Carlozzi, Noelle E
Publicado 2019

Huntington’s Disease Community Perspectives on Desired Characteristics of Disease Modifying Therapies

por Gornick, Michele C., Ryan, Kerry A., Dayalu, Praveen, Carlozzi, Noelle E., Albin, Roger L., Zahuranec, Darin B.
Publicado 2021

National Institutes of Health Pathways to Prevention Workshop: Physical Activity and Health for Wheelchair Users

por Gurwitz, Jerry H., Carlozzi, Noelle E., Davison, Kirsten K., Evenson, Kelly R., Gaskin, Darrell J., Lushniak, Boris
Publicado 2021

Identifying Design Opportunities for Adaptive mHealth Interventions That Target General Well-Being: Interview Study With Informal Care Partners

por Yan, Xinghui, Newman, Mark W, Park, Sun Young, Sander, Angelle, Choi, Sung Won, Miner, Jennifer, Wu, Zhenke, Carlozzi, Noelle
Publicado 2023

An App-Based Just-in-Time Adaptive Self-management Intervention for Care Partners (CareQOL): Protocol for a Pilot Trial

por Carlozzi, Noelle E, Choi, Sung Won, Wu, Zhenke, Miner, Jennifer A, Lyden, Angela K, Graves, Christopher, Wang, Jitao, Sen, Srijan
Publicado 2021

Understanding How Chorea Affects Health-Related Quality of Life in Huntington Disease: An Online Survey of Patients and Caregivers in the United States

por Thorley, Eileen Mack, Iyer, Ravi G., Wicks, Paul, Curran, Chris, Gandhi, Sanjay K., Abler, Victor, Anderson, Karen E., Carlozzi, Noelle E.
Publicado 2018

Improving outcomes for care partners of persons with traumatic brain injury: Protocol for a randomized control trial of a just-in-time-adaptive self-management intervention

por Carlozzi, Noelle E., Sander, Angelle M., Choi, Sung Won, Wu, Zhenke, Miner, Jennifer A., Lyden, Angela K., Graves, Christopher, Sen, Srijan
Publicado 2022

The reliability and validity of the TBI-CareQOL system in four diverse caregiver groups

por Carlozzi, Noelle E., Choi, Sung Won, Wu, Zhenke, Sen, Srijan, Troost, Jonathan, Lyden, Angela K., Miner, Jennifer A., Graves, Christopher, Sander, Angelle M.
Publicado 2023

The Dosing of Mobile-Based Just-in-Time Adaptive Self-Management Prompts for Caregivers: Preliminary Findings From a Pilot Microrandomized Study

por Wang, Jitao, Wu, Zhenke, Choi, Sung Won, Sen, Srijan, Yan, Xinghui, Miner, Jennifer A, Sander, Angelle M, Lyden, Angela K, Troost, Jonathan P, Carlozzi, Noelle E
Publicado 2023

Promoting Health and Well-Being Through Mobile Health Technology (Roadmap 2.0) in Family Caregivers and Patients Undergoing Hematopoietic Stem Cell Transplantation: Protocol for th...

por Rozwadowski, Michelle, Dittakavi, Manasa, Mazzoli, Amanda, Hassett, Afton L, Braun, Thomas, Barton, Debra L, Carlozzi, Noelle, Sen, Srijan, Tewari, Muneesh, Hanauer, David A, Choi, Sung Won
Publicado 2020

Health-Related Quality of Life in Focal Segmental Glomerular Sclerosis and Minimal Change Disease: A Qualitative Study of Children and Adults to Inform Patient-Reported Outcomes

por Carlozzi, Noelle E., Massengill, Susan F., Trachtman, Howard, Walsh, Liron, Singhal, Neena, LaVigne, Joseph M., Miner, Jennifer A., Desmond, Hailey E., Lynam, Christian, Gipson, Debbie S.
Publicado 2021

Advance Care Planning and Health-Related Quality of Life in Huntington Disease: Results from a Multicenter National Study

por Sokol, Leonard L., Troost, Jonathan P., Bega, Danny, Kluger, Benzi M., Prigerson, Holly G., Nance, Martha, Frank, Samuel, Perlmutter, Joel S., Dayalu, Praveen, Cella, David, Carlozzi, Noelle E.
Publicado 2023

Development of a New Measure of Housing Security: The REDD-CAT Housing Security Measure

por Carlozzi, Noelle E., Kallen, Michael A., Troost, Jonathan P., Miner, Jennifer A., Bragg, Alexa, Martin-Howard, Jessica, De La Cruz, Barbara, Moldovan, Ioana, Jack, Brian W., Mitchell, Suzanne
Publicado 2023

Identifying Motor, Emotional–Behavioral, and Cognitive Deficits that Comprise the Triad of HD Symptoms from Patient, Caregiver, and Provider Perspectives

por Victorson, David, Carlozzi, Noelle E., Frank, Samuel, Beaumont, Jennifer L., Cheng, Wendy, Gorin, Brian, Duh, Mei Sheng, Samuelson, David, Tulsky, David, Gutierrez, Sandra, Nowinski, Cindy J., Mueller, Allison, Shen, Vivienne, Sung, Victor
Publicado 2014

HD-PRO-TRIAD™ Validation: A Patient-reported Instrument for the Symptom Triad of Huntington's Disease

por Carlozzi, Noelle E., Victorson, David, Sung, Victor, Beaumont, Jennifer L., Cheng, Wendy, Gorin, Brian, Duh, Mei Sheng, Samuelson, David, Tulsky, David, Gutierrez, Sandra, Nowinski, Cindy J., Mueller, Allison, Shen, Vivienne, Frank, Samuel
Publicado 2014

Health and Functional Literacy in Physical Rehabilitation Patients

por Hahn, Elizabeth A., Magasi, Susan R., Carlozzi, Noelle E., Tulsky, David S., Wong, Alex, Garcia, Sofia F., Lai, Jin-Shei, Hammel, Joy, Miskovic, Ana, Jerousek, Sara, Goldsmith, Arielle, Nitsch, Kristian, Heinemann, Allen W.
Publicado 2017

Meaning and purpose in Huntington’s disease: a longitudinal study of its impact on quality of life

por Sokol, Leonard L., Troost, Jonathan P., Kluger, Benzi M., Applebaum, Allison J., Paulsen, Jane S., Bega, Danny, Frank, Samuel, Hauser, Joshua M., Boileau, Nicholas R., Depp, Colin A., Cella, David, Carlozzi, Noelle E.
Publicado 2021

Health Related Quality of Life in Adult Low and High-Grade Glioma Patients Using the National Institutes of Health Patient Reported Outcomes Measurement Information System (PROMIS)...

por Gabel, Nicolette, Altshuler, David B., Brezzell, Amanda, Briceño, Emily M., Boileau, Nicholas R., Miklja, Zachary, Kluin, Karen, Ferguson, Thomas, McMurray, Kaitlin, Wang, Lin, Smith, Sean R., Carlozzi, Noelle E., Hervey-Jumper, Shawn L.
Publicado 2019

Vision-related quality of life in adults with severe peripheral vision loss: a qualitative interview study

por Lange, Ryan, Kumagai, Abigail, Weiss, Sara, Zaffke, Katherine B., Day, Sherry, Wicker, Donna, Howson, Ashley, Jayasundera, K. Thiran, Smolinski, Lori, Hedlich, Christina, Lee, Paul P., Massof, Robert W., Stelmack, Joan A., Carlozzi, Noelle E., Ehrlich, Joshua R.
Publicado 2021

A pilot intervention of using a mobile health app (ONC Roadmap) to enhance health-related quality of life in family caregivers of pediatric patients with cancer

por Koblick, Sarah B., Yu, Miao, DeMoss, Matthew, Liu, Qiaoxue, Nessle, Charles N., Rozwadowski, Michelle, Troost, Jonathan P., Miner, Jennifer A., Hassett, Afton, Carlozzi, Noelle E., Barton, Debra L., Tewari, Muneesh, Hanauer, David A., Choi, Sung Won
Publicado 2023