Eradication success for non-tuberculous mycobacteria in children with cystic fibrosis

por Hughes, Dominic A., Bokobza, Idan, Carr, Siobhán B.
Publicado 2021

Children and Adults Tai Chi Study (CF-CATS2): a randomised controlled feasibility study comparing internet-delivered with face-to-face Tai Chi lessons in cystic fibrosis

por Carr, Siobhán B., Ronan, Patricia, Lorenc, Ava, Mian, Awais, Madge, Susan L., Robinson, Nicola
Publicado 2018

Learning to breathe with Tai Chi online - qualitative data from a randomized controlled feasibility study of patients with cystic fibrosis

por Ronan, Patricia, Mian, Awais, Carr, Siobhán B., Madge, Susan L., Lorenc, Ava, Robinson, Nicola
Publicado 2020

Using Negative Control Outcomes and Difference-in-Differences Analysis to Estimate Treatment Effects in an Entirely Treated Cohort: The Effect of Ivacaftor in Cystic Fibrosis

por Newsome, Simon J, Daniel, Rhian M, Carr, Siobhán B, Bilton, Diana, Keogh, Ruth H
Publicado 2021

Seasonal fluctuation of lung function in cystic fibrosis: A national register-based study in two northern European populations

por Qvist, Tavs, Schlüter, Daniela K., Rajabzadeh, Vian, Diggle, Peter J., Pressler, Tania, Carr, Siobhán B., Taylor-Robinson, David
Publicado 2019

Treatment Preference Among People With Cystic Fibrosis: The Importance of Reducing Treatment Burden

por Cameron, Rory A., Office, Daniel, Matthews, Jessie, Rowley, Mark, Abbott, Janice, Simmonds, Nicholas J., Whitty, Jennifer A., Carr, Siobhán B.
Publicado 2022

Exploring the nature of perceived treatment burden: a study to compare treatment burden measures in adults with cystic fibrosis

por Altabee, Rana, Carr, Siobhan B., Abbott, Janice, Cameron, Rory, Office, Daniel, Matthews, Jessie, Simmonds, Nicholas, Cosgriff, Rebecca, Turner, David, Whitty, Jennifer
Publicado 2022

Data Resource Profile: The UK Cystic Fibrosis Registry

por Taylor-Robinson, David, Archangelidi, Olia, Carr, Siobhán B, Cosgriff, Rebecca, Gunn, Elaine, Keogh, Ruth H, MacDougall, Amy, Newsome, Simon, Schlüter, Daniela K, Stanojevic, Sanja, Bilton, Diana
Publicado 2018

Impact of cystic fibrosis on birthweight: a population based study of children in Denmark and Wales

por Schlüter, Daniela K, Griffiths, Rowena, Adam, Abdulfatah, Akbari, Ashley, Heaven, Martin L, Paranjothy, Shantini, Nybo Andersen, Anne-Marie, Carr, Siobhán B, Pressler, Tania, Diggle, Peter J, Taylor-Robinson, David
Publicado 2019

Registries and collaborative studies for primary ciliary dyskinesia in Europe

por Ardura-Garcia, Cristina, Goutaki, Myrofora, Carr, Siobhán B., Crowley, Suzanne, Halbeisen, Florian S., Nielsen, Kim G., Pennekamp, Petra, Raidt, Johanna, Thouvenin, Guillaume, Yiallouros, Panayiotis K., Omran, Heymut, Kuehni, Claudia E.
Publicado 2020

A grumbling concern: an international survey of gastrointestinal symptoms in cystic fibrosis in the modulator era

por Calthorpe, Rebecca J, Goodchild, Natalie, Gleetus, Vigilius, Premakumar, Vinishaa, Hayee, Bu, Elliott, Zoe, Evans, Bethinn, Rowbotham, Nicola J, Carr, Siobhán B, Barr, Helen, Horsley, Alexander, Peckham, Daniel, Smyth, Alan R
Publicado 2023

Future therapies for cystic fibrosis

por Allen, Lucy, Allen, Lorna, Carr, Siobhan B., Davies, Gwyneth, Downey, Damian, Egan, Marie, Forton, Julian T., Gray, Robert, Haworth, Charles, Horsley, Alexander, Smyth, Alan R., Southern, Kevin W., Davies, Jane C.
Publicado 2023

Lung function in children with cystic fibrosis in the USA and UK: a comparative longitudinal analysis of national registry data

por Schlüter, Daniela K, Ostrenga, Josh S, Carr, Siobhán B, Fink, Aliza K, Faro, Albert, Szczesniak, Rhonda D, Keogh, Ruth H, Charman, Susan C, Marshall, Bruce C, Goss, Christopher H, Taylor-Robinson, David
Publicado 2022

An observational study of the lung clearance index throughout childhood in cystic fibrosis: early years matter

por Davies, Gwyneth, Stanojevic, Sanja, Raywood, Emma, Duncan, Julie A., Stocks, Janet, Lum, Sooky, Bush, Andrew, Viviani, Laura, Wade, Angie, Calder, Alistair, Owens, Catherine M., Goubau, Christophe, Carr, Siobhán B., Bossley, Cara J., Pao, Caroline, Aurora, Paul
Publicado 2020

Projecting the impact of triple CFTR modulator therapy on intravenous antibiotic requirements in cystic fibrosis using patient registry data combined with treatment effects from ra...

por Keogh, Ruth H, Cosgriff, Rebecca, Andrinopoulou, Eleni-Rosalina, Brownlee, Keith G, Carr, Siobhán B, Diaz-Ordaz, Karla, Granger, Emily, Jewell, Nicholas P, Lewin, Alex, Leyrat, Clemence, Schlüter, Daniela K, van Smeden, Maarten, Szczesniak, Rhonda D, Connett, Gary J
Publicado 2022

A multinational report to characterise SARS-CoV-2 infection in people with cystic fibrosis

por Cosgriff, Rebecca, Ahern, Susannah, Bell, Scott C., Brownlee, Keith, Burgel, Pierre-Régis, Byrnes, Cass, Corvol, Harriet, Cheng, Stephanie Y., Elbert, Alexander, Faro, Albert, Goss, Christopher H., Gulmans, Vincent, Marshall, Bruce C., McKone, Edward, Middleton, Peter G., Ruseckaite, Rasa, Stephenson, Anne L., Carr, Siobhán B
Publicado 2020

Proceedings of the 4(th) BEAT-PCD Conference and 5(th) PCD Training School

por Gardner, Laura E., Horton, Katie L., Shoemark, Amelia, Lucas, Jane S., Nielsen, Kim G., Kobbernagel, Helene, Rubbo, Bruna, Hirst, Robert A., Kouis, Panayiotis, Ullmann, Nicola, Reula, Ana, Rumman, Nisreen, Mitchison, Hannah M., Pinto, Andreia, Richardson, Charlotte, Schmidt, Anne, Thompson, James, Gaupmann, René, Dabrowski, Maciej, Mill, Pleasantine, Carr, Siobhan B., Norris, Dominic P., Kuehni, Claudia E., Goutaki, Myrofora, Hogg, Claire
Publicado 2020

Pulmonary exacerbations in patients with primary ciliary dyskinesia: an expert consensus definition for use in clinical trials

por Lucas, Jane S., Gahleitner, Florian, Amorim, Adelina, Boon, Mieke, Brown, Philippa, Constant, Carolina, Cook, Simon, Crowley, Suzanne, Destouches, Damien M.S., Eber, Ernst, Mussaffi, Huda, Haarman, Eric, Harris, Amanda, Koerner-Rettberg, Cordula, Kuehni, Claudia E., Latzin, Philipp, Loebinger, Michael R., Lorent, Natalie, Maitre, Bernard, Moreno-Galdó, Antonio, Nielsen, Kim G., Özçelik, Uğur, Philipsen, Lue Katrine Drasbæk, Pohunek, Petr, Polverino, Eva, Rademacher, Jessica, Robinson, Phil, Snijders, Deborah, Yiallouros, Panayiotis, Carr, Siobhán B.
Publicado 2019

Clinical characteristics of SARS-CoV-2 infection in children with cystic fibrosis: An international observational study

por Bain, Robert, Cosgriff, Rebecca, Zampoli, Marco, Elbert, Alexander, Burgel, Pierre-Régis, Carr, Siobhán B, Castaños, Claudio, Colombo, Carla, Corvol, Harriet, Faro, Albert, Goss, Christopher H, Gutierrez, Hector, Jung, Andreas, Kashirskaya, Nataliya, Marshall, Bruce C, Melo, Joel, Mondejar-Lopez, Pedro, de Monestrol, Isabelle, Naehrlich, Lutz, Padoan, Rita, Pastor-Vivero, Maria Dolores, Rizvi, Samar, Salvatore, Marco, Filho, Luiz Vicente Ribeiro Ferreira da Silva, Brownlee, Keith G, Haq, Iram J, Brodlie, Malcolm
Publicado 2021

The global impact of SARS-CoV-2 in 181 people with cystic fibrosis

por McClenaghan, Elliot, Cosgriff, Rebecca, Brownlee, Keith, Ahern, Susannah, Burgel, Pierre-Régis, Byrnes, Catherine A, Colombo, Carla, Corvol, Harriet, Cheng, Stephanie Y, Daneau, Géraldine, Elbert, Alexander, Faro, Albert, Goss, Christopher H, Gulmans, Vincent, Gutierrez, Hector, de Monestrol, Isabelle, Jung, Andreas, Justus, Lutz Nährlich, Kashirskaya, Nataliya, Marshall, Bruce C, McKone, Edward, Middleton, Peter G, Mondejar-Lopez, Pedro, Pastor-Vivero, M Dolores, Padoan, Rita, Rizvi, Samar, Ruseckaite, Rasa, Salvatore, Marco, Stephenson, Anne L., Filho, Luiz Vicente R da Silva, Melo, Joel, Zampoli, Marco, Carr, Siobhán B
Publicado 2020