Support and information needs of people with systemic sclerosis by time since diagnosis: A cross-sectional study

por Provencher, Sabrina, Henry, Richard S, Bacalao, Carolina, Carrier, Marie-Eve, Kwakkenbos, Linda, Thombs, Brett D
Publicado 2023

Nutrition Information Resources Used by People With Systemic Sclerosis and Perceived Advantages and Disadvantages: A Nominal Group Technique Study

por Østbø, Nora, Jimenez, Elizabeth Y., Harb, Sami, Bourgeault, Angelica, Carrier, Marie‐Eve, Thombs, Brett D.
Publicado 2021

Assessing differential item functioning for the Social Appearance Anxiety Scale: a Scleroderma Patient-centred Intervention Network (SPIN) Cohort Study

por Sommer, Sophia J, Harel, Daphna, Kwakkenbos, Linda, Carrier, Marie-Eve, Gholizadeh, Shadi, Gottesman, Karen, Leite, Catarina, Malcarne, Vanessa L, Thombs, Brett D
Publicado 2020

Shortening patient-reported outcome measures through optimal test assembly: application to the Social Appearance Anxiety Scale in the Scleroderma Patient-centered Intervention Netw...

por Harel, Daphna, Mills, Sarah D, Kwakkenbos, Linda, Carrier, Marie-Eve, Nielsen, Karen, Portales, Alexandra, Bartlett, Susan J, Malcarne, Vanessa L, Thombs, Brett D
Publicado 2019

Factors associated with patient-reported likelihood of using online self-care interventions: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study

por Kwakkenbos, Linda, Cumin, Julie, Carrier, Marie-Eve, Bartlett, Susan J, Malcarne, Vanessa L, Mouthon, Luc, Nielson, Warren R, Rannou, François, Welling, Joep, Thombs, Brett D
Publicado 2019

Mental health before and during the pandemic in people with systemic sclerosis

por Henry, Richard S, Kwakkenbos, Linda, Carrier, Marie-Eve, Negeri, Zelalem, Bourgeault, Angelica, Patten, Scott, Bartlett, Susan J, Mouthon, Luc, Varga, John, Benedetti, Andrea, Thombs, Brett D
Publicado 2022

Changes in mental health symptoms from pre-COVID-19 to COVID-19 among participants with systemic sclerosis from four countries: A Scleroderma Patient-centered Intervention Network...

por Thombs, Brett D., Kwakkenbos, Linda, Henry, Richard S., Carrier, Marie-Eve, Patten, Scott, Harb, Sami, Bourgeault, Angelica, Tao, Lydia, Bartlett, Susan J., Mouthon, Luc, Varga, John, Benedetti, Andrea
Publicado 2020

Scleroderma Patient-centered Intervention Network—Scleroderma Support group Leader EDucation (SPIN-SSLED) program: non-randomised feasibility trial

por Thombs, Brett D, Dyas, Laura, Pépin, Mia, Aguila, Kylene, Carrier, Marie-Eve, Tao, Lydia, Harb, Sami, Malcarne, Vanessa L, El-Baalbaki, Ghassan, Peláez, Sandra, Sauve, Maureen, Hudson, Marie, Platt, Robert W
Publicado 2019

Differences in Disability Perception in Systemic Sclerosis: A Mirror Survey of Patients and Health Care Providers

por Kirren, Quentin, Daste, Camille, Foissac, Frantz, Abdoul, Hendy, Alami, Sophie, Carrier, Marie-Eve, Kwakkenbos, Linda, Lefèvre-Colau, Marie-Martine, Rannou, François, Papelard, Agathe, Roren, Alexandra, Thombs, Brett D., Mouthon, Luc, Nguyen, Christelle
Publicado 2023

Mental Health Care Use and Associated Factors in Systemic Sclerosis: A Scleroderma Patient‐Centered Intervention Network Cohort Study

por Becetti, Karima, Nguyen, Joseph T., Kwakkenbos, Linda, Carrier, Marie‐Eve, Tao, Lydia, Gordon, Jessica K., Mancuso, Carol A., Welling, Joep, Mouthon, Luc, Bartlett, Susan J., Malcarne, Vanessa L., Thombs, Brett D., Spiera, Robert F.
Publicado 2022

Exploring Sources of Emotional Distress among People Living with Scleroderma: A Focus Group Study

por Gumuchian, Stephanie T., Peláez, Sandra, Delisle, Vanessa C., Carrier, Marie-Eve, Jewett, Lisa R., El-Baalbaki, Ghassan, Fortune, Catherine, Hudson, Marie, Impens, Ann, Körner, Annett, Persmann, Jennifer, Kwakkenbos, Linda, Bartlett, Susan J., Thombs, Brett D.
Publicado 2016

Protocol for a partially nested randomized controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network Support Group Leader EDucation (S...

por Thombs, Brett D., Aguila, Kylene, Dyas, Laura, Carrier, Marie-Eve, Fedoruk, Claire, Horwood, Linda, Cañedo-Ayala, Mara, Sauvé, Maureen, Kwakkenbos, Linda, Malcarne, Vanessa L., El-Baalbaki, Ghassan, Peláez, Sandra, Connolly, Kerri, Hudson, Marie, Platt, Robert W.
Publicado 2019

Factors associated with fears due to COVID-19: A Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 cohort study

por Wu, Yin, Kwakkenbos, Linda, Henry, Richard S., Carrier, Marie-Eve, Gagarine, Maria, Harb, Sami, Bourgeault, Angelica, Tao, Lydia, Carboni-Jiménez, Andrea, Negeri, Zelalem, Patten, Scott, Bartlett, Susan J., Mouthon, Luc, Varga, John, Benedetti, Andrea, Thombs, Brett D.
Publicado 2021

Systemic sclerosis and COVID-19 vaccines: a SPIN Cohort study

por Gordon, Jessica K, Showalter, Kimberly, Wu, Yin, Kwakkenbos, Linda, Carrier, Marie-Eve, Henry, Richard S, Østbø, Nora, Nordlund, Julia, Bourgeault, Angelica, Cañedo-Ayala, Mara, Carboni-Jiménez, Andrea, Denton, Christopher P, Mouthon, Luc, Thombs, Brett D, Spiera, Robert F
Publicado 2022

Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPI...

por Wojeck, Robyn K., Knisely, Mitchell R., Bailey, Donald E., Somers, Tamara J., Kwakkenbos, Linda, Carrier, Marie-Eve, Nielson, Warren R., Bartlett, Susan J., Malcarne, Vanessa L., Hudson, Marie, Levis, Brooke, Benedetti, Andrea, Mouthon, Luc, Thombs, Brett D., Silva, Susan G.
Publicado 2023

Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating ‘not applicable’ responses as missing data: a Scleroderma Patie...

por Merz, Erin L, Kwakkenbos, Linda, Carrier, Marie-Eve, Gholizadeh, Shadi, Mills, Sarah D, Fox, Rina S, Jewett, Lisa R, Williamson, Heidi, Harcourt, Diana, Assassi, Shervin, Furst, Daniel E, Gottesman, Karen, Mayes, Maureen D, Moss, Tim P, Thombs, Brett D, Malcarne, Vanessa L
Publicado 2018

Validation of the COVID-19 Fears Questionnaires for Chronic Medical Conditions: A Scleroderma Patient-centered Intervention Network COVID-19 Cohort study

por Wu, Yin, Kwakkenbos, Linda, Henry, Richard S., Tao, Lydia, Harb, Sami, Bourgeault, Angelica, Carrier, Marie-Eve, Levis, Brooke, Sun, Ying, Bhandari, Parash Mani, Carboni-Jiménez, Andrea, Gagarine, Maria, He, Chen, Krishnan, Ankur, Negeri, Zelalem F., Neupane, Dipika, Mouthon, Luc, Bartlett, Susan J., Benedetti, Andrea, Thombs, Brett D.
Publicado 2020

Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND)

por Kwakkenbos, Linda, Carrier, Marie-Eve, Welling, Joep, Turner, Kimberly A., Cumin, Julie, Pépin, Mia, van den Ende, Cornelia, Schouffoer, Anne A., Hudson, Marie, van Breda, Ward, Sauve, Maureen, Mayes, Maureen D., Malcarne, Vanessa L., Nielson, Warren R., Nguyen, Christelle, Boutron, Isabelle, Rannou, François, Thombs, Brett D., Mouthon, Luc
Publicado 2022

Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Inte...

por Kwakkenbos, Linda, Carrier, Marie-Eve, Welling, Joep, Levis, Brooke, Levis, Alexander W., Sauve, Maureen, Turner, Kimberly A., Tao, Lydia, Aguila, Kylene, Carboni-Jiménez, Andrea, Cañedo-Ayala, Mara, Harb, Sami, van den Ende, Cornelia, Hudson, Marie, van Breda, Ward, Nguyen, Christelle, Boutron, Isabelle, Rannou, François, Thombs, Brett D., Mouthon, Luc
Publicado 2022

Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of scleroderma support groups:...

por Thombs, Brett D., Levis, Brooke, Carrier, Marie-Eve, Dyas, Laura, Nordlund, Julia, Tao, Lydia, Aguila, Kylene, Bourgeault, Angelica, Konrad, Violet, Sauvé, Maureen, Connolly, Kerri, Henry, Richard S., Østbø, Nora, Levis, Alexander W., Kwakkenbos, Linda, Malcarne, Vanessa L., El-Baalbaki, Ghassan, Hudson, Marie, Wurz, Amanda, Culos-Reed, S. Nicole, Platt, Robert W., Benedetti, Andrea
Publicado 2022