A Community-Based Participatory Framework to Co-Develop Patient Education Materials (PEMs) for Rare Diseases: A Model Transferable across Diseases

por Falcão, Marta, Allocca, Mariateresa, Rodrigues, Ana Sofia, Granjo, Pedro, Francisco, Rita, Pascoal, Carlota, Rossi, Maria Grazia, Marques-da-Silva, Dorinda, Magrinho, Salvador C. M., Jaeken, Jaak, Castro, Larisa Aragon, de Freitas, Cláudia, Videira, Paula A., de Andrés-Aguayo, Luísa, dos Reis Ferreira, Vanessa
Publicado 2023