Learning from the Pandemic to Improve Care for Vulnerable Communities: The Perspectives and Recommendations from the Rare Disease Community

por Castro, Raquel, Berjonneau, Erwan, Courbier, Sandra
Publicado 2021

Share and protect our health data: an evidence based approach to rare disease patients’ perspectives on data sharing and data protection - quantitative survey and recommendations

por Courbier, Sandra, Dimond, Rebecca, Bros-Facer, Virginie
Publicado 2019