A novel patient-reported outcome instrument assessing the symptoms of paroxysmal nocturnal hemoglobinuria, the PNH-SQ

por Daly, R. Paola, Jalbert, Jessica J., Keith, Shannon, Symonds, Tara, Shammo, Jamile
Publicado 2021

Patient-Reported Lupus Flare Symptoms Are Associated with Worsened Patient Outcomes and Increased Economic Burden

por Katz, Patricia, Nelson, Winnie W., Daly, R. Paola, Topf, Lauren, Connolly-Strong, Erin, Reed, Michael L.
Publicado 2020

Development and content validity of the Lupus Foundation of America rapid evaluation of activity in lupus (LFA-REAL™): a patient-reported outcome measure for lupus disease activity...

por Askanase, Anca D., Daly, R. Paola, Okado, Miya, Neville, Kayla, Pong, Avery, Hanrahan, Leslie M., Merrill, Joan T.
Publicado 2019

Research priorities in childhood-onset lupus: results of a multidisciplinary prioritization exercise

por Ardoin, Stacy P., Daly, R Paola, Merzoug, Lyna, Tse, Karin, Ardalan, Kaveh, Arkin, Lisa, Knight, Andrea, Rubinstein, Tamar, Ruth, Natasha, Wenderfer, Scott E., Hersh, Aimee O.
Publicado 2019

Engaging patients and parents to improve mental health intervention for youth with rheumatological disease

por Fawole, Oluwatunmise A., Reed, Michelle V., Harris, Julia G., Hersh, Aimee, Rodriguez, Martha, Onel, Karen, Lawson, Erica, Rubinstein, Tamar, Ardalan, Kaveh, Morgan, Esi, Paul, Anne, Barlin, Judy, Daly, R. Paola, Dave, Mitali, Malloy, Shannon, Hume, Shari, Schrandt, Suzanne, Marrow, Laura, Chapson, Angela, Napoli, Donna, Napoli, Michael, Moyer, Miranda, Delgaizo, Vincent, Danguecan, Ashley, von Scheven, Emily, Knight, Andrea
Publicado 2021