Self-regulation in Barth syndrome: a qualitative perspective of adolescents, adults and parents in the U.K

por Searle, Aidan, Herbert, Georgia, Dabner, Lucy, Steward, Colin G., Damin, Michaela, Pieles, Guido
Publicado 2021

Barth syndrome

por Clarke, Sarah LN, Bowron, Ann, Gonzalez, Iris L, Groves, Sarah J, Newbury-Ecob, Ruth, Clayton, Nicol, Martin, Robin P, Tsai-Goodman, Beverly, Garratt, Vanessa, Ashworth, Michael, Bowen, Valerie M, McCurdy, Katherine R, Damin, Michaela K, Spencer, Carolyn T, Toth, Matthew J, Kelley, Richard I, Steward, Colin G
Publicado 2013