Prioritization of therapy uncertainties in Dystrophic Epidermolysis Bullosa: where should research direct to? an example of priority setting partnership in very rare disorders

por Davila-Seijo, Paula, Hernández-Martín, Angela, Morcillo-Makow, Evanina, Lucas, Raúl de, Domínguez, Esther, Romero, Natividad, Monrós, Eva, Feito, Marta, Carretero, Luis, Aranegui, Bea, García-Doval, Ignacio
Publicado 2013