Public Views About Involvement in Decision-Making on Health Data Sharing, Access, Use and Reuse: The Importance of Trust in Science and Other Institutions

por Nwebonyi, Ngozi, Silva, Susana, de Freitas, Cláudia
Publicado 2022

Involvement in maternal care by migrants and ethnic minorities: a narrative review

por De Freitas, Cláudia, Massag, Janka, Amorim, Mariana, Fraga, Sílvia
Publicado 2020

Concerns and coping mechanisms during the first national COVID-19 lockdown: an online prospective study in Portugal

por Silva, Susana, Machado, Helena, de Freitas, Cláudia, Lucas, Raquel
Publicado 2022

The Influence of Human-Milk Substitutes Marketing on Breastfeeding Intention and Practice among Native and Immigrant Brazilians

por Lisi, Cosima, Barros, Henrique, Faisal-Cury, Alexandre, Matijasevich, Alicia, de Freitas, Cláudia
Publicado 2022

Public and patient involvement in needs assessment and social innovation: a people-centred approach to care and research for congenital disorders of glycosylation

por de Freitas, Cláudia, dos Reis, Vanessa, Silva, Susana, Videira, Paula A., Morava, Eva, Jaeken, Jaak
Publicado 2017

Umbilical Nodule with Cyclical Bleeding: A Case Report and Literature Review of Atypical Endometriosis

por Andrade, Marlene Teixeira, de Freitas, Cláudia V. Marques, Câmara, Sara Filipa Camacho, Vieira, José Joaquim Nunes
Publicado 2016

Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research

por de Freitas, Cláudia, Amorim, Mariana, Machado, Helena, Leão Teles, Elisa, Baptista, Maria João, Renedo, Alicia, Provoost, Veerle, Silva, Susana
Publicado 2021

Benefits and Risks of Sharing Genomic Data for Research: Comparing the Views of Rare Disease Patients, Informal Carers and Healthcare Professionals

por Amorim, Mariana, Silva, Susana, Machado, Helena, Teles, Elisa Leão, Baptista, Maria João, Maia, Tiago, Nwebonyi, Ngozi, de Freitas, Cláudia
Publicado 2022

Lemierre syndrome: a rare complication of pharyngotonsillitis()()

por Noh, Hyun Jin, de Freitas, Claudia Antunha, de Paula e Silva Felici de Souza, Rafael, Simões, Juliana Caminha, Kosugi, Eduardo Macoto
Publicado 2015

A Community-Led Approach as a Guide to Overcome Challenges for Therapy Research in Congenital Disorders of Glycosylation

por Francisco, Rita, Brasil, Sandra, Pascoal, Carlota, Edmondson, Andrew C., Jaeken, Jaak, Videira, Paula A., de Freitas, Cláudia, Ferreira, Vanessa dos Reis, Marques-da-Silva, Dorinda
Publicado 2022

A Community-Based Participatory Framework to Co-Develop Patient Education Materials (PEMs) for Rare Diseases: A Model Transferable across Diseases

por Falcão, Marta, Allocca, Mariateresa, Rodrigues, Ana Sofia, Granjo, Pedro, Francisco, Rita, Pascoal, Carlota, Rossi, Maria Grazia, Marques-da-Silva, Dorinda, Magrinho, Salvador C. M., Jaeken, Jaak, Castro, Larisa Aragon, de Freitas, Cláudia, Videira, Paula A., de Andrés-Aguayo, Luísa, dos Reis Ferreira, Vanessa
Publicado 2023