Addressing Symptom Burden and Palliative Care Needs in Cystic Fibrosis: A Narrative Review of the Literature

por DiFiglia, Stephanie, Dhingra, Lara, Georgiopoulos, Anna M., Papia, Katherine, Sullivan, Erin, Plachta, Amy, Boccio, Courtney, Portenoy, Russell, Basile, Melissa
Publicado 2023

Models of Palliative Care Delivery for Individuals with Cystic Fibrosis: Cystic Fibrosis Foundation Evidence-Informed Consensus Guidelines

por Kavalieratos, Dio, Georgiopoulos, Anna M., Dhingra, Lara, Basile, Melissa J., Rabinowitz, Elliot, Hempstead, Sarah E., Faro, Albert, Dellon, Elisabeth P.
Publicado 2021

Development of a Cystic Fibrosis Primary Palliative Care Intervention: Qualitative Analysis of Patient and Family Caregiver Preferences

por Basile, Melissa J, Dhingra, Lara, DiFiglia, Stephanie, Polo, Jennifer, Portenoy, Russell, Wang, Janice, Walker, Patricia, Middour-Oxler, Brandi, Linnemann, Rachel W, Kier, Catherine, Friedman, Deborah, Berdella, Maria, Abdullah, Robert, Yonker, Lael M, Markovitz, Martha, Hadjiliadis, Denis, Shiffman, Melissa, Fischer, Francine, Pollinger, Sophie, Hardcastle, Margot, Chaudhary, Nivedita, Georgiopoulos, Anna M
Publicado 2023