A tailored intervention for illness acceptance improves adherence and quality of life in adults with haemophilia using prophylaxis

por Hoefnagels, Johanna Wilhelmina, Fischer, Kathelijn, Bos, Ruud A. T., Driessens, Mariette H. E., Schrijvers, Liesbeth H.
Publicado 2021

Informed consent for neonatal trials: practical points to consider and a check list

por Aurich, Beate, Vermeulen, Eric, Elie, Valéry, Driessens, Mariette H E, Kubiak, Christine, Bonifazi, Donato, Jacqz-Aigrain, Evelyne
Publicado 2020

The experiences and attitudes of hemophilia carriers around pregnancy: A qualitative systematic review

por Punt, Marieke C., Aalders, Tanja H., Bloemenkamp, Kitty W. M., Driessens, Mariette H. E., Fischer, Kathelijn, Schrijvers, Marlies H., van Galen, Karin P. M.
Publicado 2020

A qualitative study on the experiences of haemophilia carriers before, during and after pregnancy

por Punt, Marieke C., Teela, Lorynn, Fischer, Kathelijn, Bloemenkamp, Kitty W. M., Lely, A. Titia, Driessens, Mariette H. E., Pekel, Lynnda, Haverman, Lotte, van Galen, Karin P. M.
Publicado 2021

Validation of the pedHAL(short) and HAL(short) in Dutch children and adults with haemophilia

por Kuijlaars, Isolde A. R., van der Net, Janjaap, van Vulpen, Lize F. D., Driessens, Mariette H. E., Schols, Saskia E. M., Tan, Melanie, Gouw, Samantha C., Fischer, Kathelijn
Publicado 2022

Patient Perspectives on Novel Treatments in Haemophilia: A Qualitative Study

por van Balen, Erna C., Wesselo, Marjolein L., Baker, Bridget L., Westerman, Marjan J., Coppens, Michiel, Smit, Cees, Driessens, Mariëtte H. E., Leebeek, Frank W. G., van der Bom, Johanna G., Gouw, Samantha C.
Publicado 2019

Patients’ and health care providers’ perspectives on quality of hemophilia care in the Netherlands: a questionnaire and interview study

por Brands, Martijn R., Haverman, Lotte, Muis, Jelmer J., Driessens, Mariëtte H.E., van der Meer, Felix J.M., Goedhart, Geertje, Meijer, Stephan, de Jong, Marianne, van der Bom, Johanna G., Cnossen, Marjon H., Fijnvandraat, Karin, Gouw, Samantha C.
Publicado 2023

Similar sports participation as the general population in Dutch persons with haemophilia; results from a nationwide study

por Versloot, Olav, van Balen, Erna C., Hassan, Shermarke, Schols, Saskia E.M., Leebeek, Frank W.G., Eikenboom, Jeroen, Coppens, Michiel, van Vulpen, Lize F.D., Smit, Cees, Driessens, Mariëtte H.E., van der Net, Janjaap, Gouw, Samantha C., Fischer, Kathelijn
Publicado 2021

Validation of a perioperative population factor VIII pharmacokinetic model with a large cohort of pediatric hemophilia a patients

por Preijers, Tim, Liesner, Ri, Hazendonk, Hendrika C. A. M., Chowdary, Pratima, Driessens, Mariëtte H. E., Hart, Dan P., Laros‐van Gorkom, Britta A. P., van der Meer, Felix J. M., Meijer, Karina, Fijnvandraat, Karin, Leebeek, Frank W. G., Mathôt, Ron A. A., Cnossen, Marjon H.
Publicado 2021

Desmopressin treatment combined with clotting factor VIII concentrates in patients with non-severe haemophilia A: protocol for a multicentre single-armed trial, the DAVID study

por Schütte, Lisette M, Cnossen, Marjon H, van Hest, Reinier M, Driessens, Mariette H E, Fijnvandraat, Karin, Polinder, Suzanne, Beckers, Erik A M, Coppens, Michiel, Eikenboom, Jeroen, Laros-van Gorkom, Britta A P, Meijer, Karina, Nieuwenhuizen, Laurens, Mauser-Bunschoten, Evelien P, Leebeek, Frank W G, Mathôt, Ron A A, Kruip, Marieke J H A
Publicado 2019

Socioeconomic participation of persons with hemophilia: Results from the sixth hemophilia in the Netherlands study

por van Balen, Erna C., Hassan, Shermarke, Smit, Cees, Driessens, Mariette H. E., Beckers, Erik A. M., Coppens, Michiel, Eikenboom, Jeroen C., Hooimeijer, Hélène L., Leebeek, Frank W. G., Mauser‐Bunschoten, Evelien P., van Vulpen, Lize F. D., Schols, Saskia E. M., Rosendaal, Frits R., van der Bom, Johanna G., Gouw, Samantha C.
Publicado 2022

Desmopressin in nonsevere hemophilia A: patient perspectives on use and efficacy

por Romano, Lorenzo G.R., van Vulpen, Lize F.D., den Exter, Paul L., Heubel-Moenen, Floor C.J.I., Hooijmeijer, Helene L., Coppens, Michiel, Fijnvandraat, Karin, Schols, Saskia E.M., Ypma, Paula F., Smit, Cees, Driessens, Mariëtte H.E., Rosendaal, Frits R., van der Bom, Johanna G., Gouw, Samantha C., Kruip, Marieke J.H.A.
Publicado 2023