Patient priorities for fulfilling the principle of respect in research: findings from a modified Delphi study

por Kraft, Stephanie A., Duenas, Devan M., Shah, Seema K.
Publicado 2023

Patient perspectives on how to demonstrate respect: Implications for clinicians and healthcare organizations

por Bridges, Celina, Duenas, Devan M., Lewis, Hannah, Anderson, Katherine, Opel, Douglas J., Wilfond, Benjamin S., Kraft, Stephanie A.
Publicado 2021

Assessing Parent Decisions About Child Participation in a Behavioral Health Intervention Study and Utility of Informed Consent Forms

por Kraft, Stephanie A., Porter, Kathryn M., Duenas, Devan M., Sullivan, Erin, Rowland, Maya, Saelens, Brian E., Wilfond, Benjamin S., Shah, Seema K.
Publicado 2020

Research recruitment through the patient portal: perspectives of community focus groups in Seattle and Atlanta

por Porter, Kathryn M, Kraft, Stephanie A, Speight, Candace D, Duenas, Devan M, Niyibizi, Nyiramugisha K, Mitchell, Andrea, O’Connor, M Rebecca, Gregor, Charles, Liljenquist, Kendra, Shah, Seema K, Wilfond, Benjamin S, Dickert, Neal W
Publicado 2023

Refining a Multifaceted Model of Perceived Utility of Genomic Sequencing Results

por Duenas, Devan M., Riddle, Leslie, Guerra, Claudia, Caruncho, Mikaella, Lewis, Hannah, Porter, Kathryn M., Kraft, Stephanie A., Anderson, Katherine P., Biesecker, Barbara, Gilmore, Marian J., Zepp, Jamilyn M., Leo, Michael C., Wilfond, Benjamin S., Joseph, Galen
Publicado 2023

Integrating stakeholder feedback in translational genomics research: An ethnographic analysis of a study protocol’s evolution

por Kraft, Stephanie A., McMullen, Carmit, Lindberg, Nangel M., Bui, David, Shipman, Kelly, Anderson, Katherine, Joseph, Galen, Duenas, Devan M., Porter, Kathryn M., Kauffman, Tia L., Koomas, Alyssa, Ransom, Chelese L., Jackson, Paige, Goddard, Katrina A.B., Wilfond, Benjamin S., Lee, Sandra Soo-Jin
Publicado 2020

Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews

por Mittendorf, Kathleen F., Lewis, Hannah S., Duenas, Devan M., Eubanks, Donna J., Gilmore, Marian J., Goddard, Katrina A. B., Joseph, Galen, Kauffman, Tia L., Kraft, Stephanie A., Lindberg, Nangel M., Reyes, Ana A., Shuster, Elizabeth, Syngal, Sapna, Ukaegbu, Chinedu, Zepp, Jamilyn M., Wilfond, Benjamin S., Porter, Kathryn M.
Publicado 2022