Controlled Access under Review: Improving the Governance of Genomic Data Access

por Shabani, Mahsa, Dyke, Stephanie O. M., Joly, Yann, Borry, Pascal
Publicado 2015

Evolving data access policy: The Canadian context

por Dyke, Stephanie O.M., Saulnier, Katie M., Pastinen, Tomi, Bourque, Guillaume, Joly, Yann
Publicado 2016

Registered access: a ‘Triple-A' approach

por Dyke, Stephanie O M, Kirby, Emily, Shabani, Mahsa, Thorogood, Adrian, Kato, Kazuto, Knoppers, Bartha M
Publicado 2016

Communicating science: epigenetics in the spotlight

por Dyke, Stephanie O M, Ennis, Catherine A, Joly, Yann, Walter, Jörn, Siebert, Reiner, Pastinen, Tomi
Publicado 2020

Benefits and barriers in the design of harmonized access agreements for international data sharing

por Saulnier, Katie M., Bujold, David, Dyke, Stephanie O. M., Dupras, Charles, Beck, Stephan, Bourque, Guillaume, Joly, Yann
Publicado 2019

Points-to-consider on the return of results in epigenetic research

por Dyke, Stephanie O. M., Saulnier, Katie M., Dupras, Charles, Webster, Amy P., Maschke, Karen, Rothstein, Mark, Siebert, Reiner, Walter, Jörn, Beck, Stephan, Pastinen, Tomi, Joly, Yann
Publicado 2019

Simplifying research access to genomics and health data with Library Cards

por Cabili, Moran N., Carey, Knox, Dyke, Stephanie O. M., Brookes, Anthony J., Fiume, Marc, Jeanson, Francis, Kerry, Giselle, Lash, Alex, Sofia, Heidi, Spalding, Dylan, Tasse, Anne-Marie, Varma, Susheel, Pandya, Ravi
Publicado 2018

Epigenome data release: a participant-centered approach to privacy protection

por Dyke, Stephanie O. M., Cheung, Warren A., Joly, Yann, Ammerpohl, Ole, Lutsik, Pavlo, Rothstein, Mark A., Caron, Maxime, Busche, Stephan, Bourque, Guillaume, Rönnblom, Lars, Flicek, Paul, Beck, Stephan, Hirst, Martin, Stunnenberg, Henk, Siebert, Reiner, Walter, Jörn, Pastinen, Tomi
Publicado 2015

Consent Codes: Maintaining Consent in an Ever-expanding Open Science Ecosystem

por Dyke, Stephanie O. M., Connor, Kathleen, Nembaware, Victoria, Munung, Nchangwi S., Reinold, Kathy, Kerry, Giselle, Mbiyavanga, Mamana, Zass, Lyndon, Moldes, Mauricio, Das, Samir, Davis, John M., De Argila, Jordi Rambla, Spalding, J. Dylan, Evans, Alan C., Mulder, Nicola, Karamchandani, Jason
Publicado 2022

Consent Codes: Upholding Standard Data Use Conditions

por Dyke, Stephanie O. M., Philippakis, Anthony A., Rambla De Argila, Jordi, Paltoo, Dina N., Luetkemeier, Erin S., Knoppers, Bartha M., Brookes, Anthony J., Spalding, J. Dylan, Thompson, Mark, Roos, Marco, Boycott, Kym M., Brudno, Michael, Hurles, Matthew, Rehm, Heidi L., Matern, Andreas, Fiume, Marc, Sherry, Stephen T.
Publicado 2016

Responsible sharing of biomedical data and biospecimens via the “Automatable Discovery and Access Matrix” (ADA-M)

por Woolley, J. Patrick, Kirby, Emily, Leslie, Josh, Jeanson, Francis, Cabili, Moran N., Rushton, Gregory, Hazard, James G., Ladas, Vagelis, Veal, Colin D., Gibson, Spencer J., Tassé, Anne-Marie, Dyke, Stephanie O. M., Gaff, Clara, Thorogood, Adrian, Knoppers, Bartha Maria, Wilbanks, John, Brookes, Anthony J.
Publicado 2018

Return of individual research results from genomic research: A systematic review of stakeholder perspectives

por Vears, Danya F., Minion, Joel T., Roberts, Stephanie J., Cummings, James, Machirori, Mavis, Blell, Mwenza, Budin-Ljøsne, Isabelle, Cowley, Lorraine, Dyke, Stephanie O. M., Gaff, Clara, Green, Robert, Hall, Alison, Johns, Amber L., Knoppers, Bartha M., Mulrine, Stephanie, Patch, Christine, Winkler, Eva, Murtagh, Madeleine J.
Publicado 2021

Federated discovery and sharing of genomic data using Beacons

por Fiume, Marc, Cupak, Miroslav, Keenan, Stephen, Rambla, Jordi, de la Torre, Sabela, Dyke, Stephanie O. M., Brookes, Anthony J., Carey, Knox, Lloyd, David, Goodhand, Peter, Haeussler, Maximilian, Baudis, Michael, Stockinger, Heinz, Dolman, Lena, Lappalainen, Ilkka, Törnroos, Juha, Linden, Mikael, Spalding, J. Dylan, Ur-Rehman, Saif, Page, Angela, Flicek, Paul, Sherry, Stephen, Haussler, David, Varma, Susheel, Saunders, Gary, Scollen, Serena
Publicado 2019

Publisher Correction: Federated discovery and sharing of genomic data using Beacons

por Fiume, Marc, Cupak, Miroslav, Keenan, Stephen, Rambla, Jordi, de la Torre, Sabela, Dyke, Stephanie O. M., Brookes, Anthony J., Carey, Knox, Lloyd, David, Goodhand, Peter, Haeussler, Maximilian, Baudis, Michael, Stockinger, Heinz, Dolman, Lena, Lappalainen, Ilkka, Törnroos, Juha, Linden, Mikael, Spalding, J. Dylan, Ur-Rehman, Saif, Page, Angela, Flicek, Paul, Sherry, Stephen, Haussler, David, Varma, Susheel, Saunders, Gary, Scollen, Serena
Publicado 2019

The C-BIG Repository: an Institution-Level Open Science Platform

por Das, Samir, Abou-Haidar, Rida, Rabalais, Henri, Sun, Sonia Denise Lai Wing, Rosli, Zaliqa, Chatpar, Krishna, Boivin, Marie-Noëlle, Tabatabaei, Mahdieh, Rogers, Christine, Legault, Melanie, Lo, Derek, Degroot, Clotilde, Dagher, Alain, Dyke, Stephanie O. M., Durcan, Thomas M., Seyller, Annabel, Doyon, Julien, Poupon, Viviane, Fon, Edward A., Genge, Angela, Rouleau, Guy A., Karamchandani, Jason, Evans, Alan C.
Publicado 2021

GA4GH Passport standard for digital identity and access permissions

por Voisin, Craig, Linden, Mikael, Dyke, Stephanie O.M., Bowers, Sarion R., Alper, Pinar, Barkley, Maxmillian P., Bernick, David, Chao, Jianpeng, Courtot, Mélanie, Jeanson, Francis, Konopko, Melissa A., Kuba, Martin, Lawson, Jonathan, Leinonen, Jaakko, Li, Stephanie, Ota Wang, Vivian, Philippakis, Anthony A., Reinold, Kathy, Rushton, Gregory A., Spalding, J. Dylan, Törnroos, Juha, Tulchinsky, Ilya, Guidry Auvil, Jaime M., Nyrönen, Tommi H.
Publicado 2021

Open science datasets from PREVENT-AD, a longitudinal cohort of pre-symptomatic Alzheimer’s disease

por Tremblay-Mercier, Jennifer, Madjar, Cécile, Das, Samir, Pichet Binette, Alexa, Dyke, Stephanie O.M., Étienne, Pierre, Lafaille-Magnan, Marie-Elyse, Remz, Jordana, Bellec, Pierre, Louis Collins, D., Natasha Rajah, M., Bohbot, Veronique, Leoutsakos, Jeannie-Marie, Iturria-Medina, Yasser, Kat, Justin, Hoge, Richard D., Gauthier, Serge, Tardif, Christine L., Mallar Chakravarty, M., Poline, Jean-Baptiste, Rosa-Neto, Pedro, Evans, Alan C., Villeneuve, Sylvia, Poirier, Judes, Breitner, John C.S.
Publicado 2021

International Cooperation to Enable the Diagnosis of All Rare Genetic Diseases

por Boycott, Kym M., Rath, Ana, Chong, Jessica X., Hartley, Taila, Alkuraya, Fowzan S., Baynam, Gareth, Brookes, Anthony J., Brudno, Michael, Carracedo, Angel, den Dunnen, Johan T., Dyke, Stephanie O.M., Estivill, Xavier, Goldblatt, Jack, Gonthier, Catherine, Groft, Stephen C., Gut, Ivo, Hamosh, Ada, Hieter, Philip, Höhn, Sophie, Hurles, Matthew E., Kaufmann, Petra, Knoppers, Bartha M., Krischer, Jeffrey P., Macek, Milan, Matthijs, Gert, Olry, Annie, Parker, Samantha, Paschall, Justin, Philippakis, Anthony A., Rehm, Heidi L., Robinson, Peter N., Sham, Pak-Chung, Stefanov, Rumen, Taruscio, Domenica, Unni, Divya, Vanstone, Megan R., Zhang, Feng, Brunner, Han, Bamshad, Michael J., Lochmüller, Hanns
Publicado 2017

Registered access: authorizing data access

por Dyke, Stephanie O. M., Linden, Mikael, Lappalainen, Ilkka, De Argila, Jordi Rambla, Carey, Knox, Lloyd, David, Spalding, J. Dylan, Cabili, Moran N., Kerry, Giselle, Foreman, Julia, Cutts, Tim, Shabani, Mahsa, Rodriguez, Laura L., Haeussler, Maximilian, Walsh, Brian, Jiang, Xiaoqian, Wang, Shuang, Perrett, Daniel, Boughtwood, Tiffany, Matern, Andreas, Brookes, Anthony J., Cupak, Miro, Fiume, Marc, Pandya, Ravi, Tulchinsky, Ilia, Scollen, Serena, Törnroos, Juha, Das, Samir, Evans, Alan C., Malin, Bradley A., Beck, Stephan, Brenner, Steven E., Nyrönen, Tommi, Blomberg, Niklas, Firth, Helen V., Hurles, Matthew, Philippakis, Anthony A., Rätsch, Gunnar, Brudno, Michael, Boycott, Kym M., Rehm, Heidi L., Baudis, Michael, Sherry, Stephen T., Kato, Kazuto, Knoppers, Bartha M., Baker, Dixie, Flicek, Paul
Publicado 2018

BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2

por Cline, Melissa S., Liao, Rachel G., Parsons, Michael T., Paten, Benedict, Alquaddoomi, Faisal, Antoniou, Antonis, Baxter, Samantha, Brody, Larry, Cook-Deegan, Robert, Coffin, Amy, Couch, Fergus J., Craft, Brian, Currie, Robert, Dlott, Chloe C., Dolman, Lena, den Dunnen, Johan T., Dyke, Stephanie O. M., Domchek, Susan M., Easton, Douglas, Fischmann, Zachary, Foulkes, William D., Garber, Judy, Goldgar, David, Goldman, Mary J., Goodhand, Peter, Harrison, Steven, Haussler, David, Kato, Kazuto, Knoppers, Bartha, Markello, Charles, Nussbaum, Robert, Offit, Kenneth, Plon, Sharon E., Rashbass, Jem, Rehm, Heidi L., Robson, Mark, Rubinstein, Wendy S., Stoppa-Lyonnet, Dominique, Tavtigian, Sean, Thorogood, Adrian, Zhang, Can, Zimmermann, Marc, Burn, John, Chanock, Stephen, Rätsch, Gunnar, Spurdle, Amanda B.
Publicado 2018