Improving photoprotection in adults with xeroderma pigmentosum: personalisation and tailoring in the ‘XPAND’ intervention

por Sainsbury, Kirby, Walburn, Jessica, Foster, Lesley, Morgan, Myfanwy, Sarkany, Robert, Weinman, John, Araujo-Soares, Vera
Publicado 2020

Why? What? How? Using an Intervention Mapping approach to develop a personalised intervention to improve adherence to photoprotection in patients with Xeroderma Pigmentosum

por Walburn, Jessica, Sainsbury, Kirby, Foster, Lesley, Weinman, John, Morgan, Myfanwy, Norton, Sam, Canfield, Martha, Chadwick, Paul, Sarkany, Bob, Araújo-Soares, Vera
Publicado 2020

Identifying the psychosocial predictors of ultraviolet exposure to the face in patients with xeroderma pigmentosum: a study of the behavioural factors affecting clinical outcomes i...

por Sarkany, Robert, Norton, Sam, Canfield, Martha, Morgan, Myfanwy, Foster, Lesley, Sainsbury, Kirby, Araujo-Soares, Vera, Wulf, Hans Christian, Weinman, John, Walburn, Jessica
Publicado 2022

Psychological correlates of adherence to photoprotection in a rare disease: International survey of people with Xeroderma Pigmentosum

por Walburn, Jessica, Canfield, Martha, Norton, Sam, Sainsbury, Kirby, Araújo‐Soares, Vera, Foster, Lesley, Berneburg, Mark, Sarasin, Alain, Morrison‐Bowen, Natalie, Sniehotta, Falko F., Sarkany, Robert, Weinman, John
Publicado 2019

An investigation of the predictors of photoprotection and UVR dose to the face in patients with XP: a protocol using observational mixed methods

por Walburn, Jessica, Sarkany, Robert, Norton, Sam, Foster, Lesley, Morgan, Myfanwy, Sainsbury, Kirby, Araújo-Soares, Vera, Anderson, Rebecca, Garrood, Isabel, Heydenreich, Jakob, Sniehotta, Falko F, Vieira, Rute, Wulf, Hans Christian, Weinman, John
Publicado 2017

Evaluation of a personalised adherence intervention to improve photoprotection in adults with Xeroderma Pigmentosum (XP): protocol for the trial of XPAND

por Walburn, Jessica, Norton, Sam, Sarkany, Robert, Sainsbury, Kirby, Araújo-Soares, Vera, Morgan, Myfanwy, Canfield, Martha, Foster, Lesley, Heydenreich, Jakob, McCrone, Paul, Mander, Adrian, Sniehotta, Falko F, Wulf, Hans Christian, Weinman, John
Publicado 2019