A charitable access program for patients with lysosomal storage disorders in underserved communities worldwide

por Mehta, Atul, Ramaswami, Uma, Muenzer, Joseph, Giugliani, Roberto, Ullrich, Kurt, Collin-Histed, Tanya, Panahloo, Zoya, Wellhoefer, Hartmann, Frader, Joel
Publicado 2021

Parental Views of Social Worker and Chaplain Involvement in Care and Decision Making for Critically Ill Children with Cancer

por Michelson, Kelly N., Arenson, Melanie, Charleston, Elizabeth, Clayman, Marla L., Brazg, Tracy, Rychlik, Karen, Rosenberg, Abby R., Frader, Joel
Publicado 2022

The Process and Impact of Stakeholder Engagement in Developing a Pediatric Intensive Care Unit Communication and Decision-Making Intervention

por Michelson, Kelly N, Frader, Joel, Sorce, Lauren, Clayman, Marla L, Persell, Stephen D, Fragen, Patricia, Ciolino, Jody D, Campbell, Laura C, Arenson, Melanie, Aniciete, Danica Y, Brown, Melanie L, Ali, Farah N, White, Douglas
Publicado 2016