Loneliness and disability: A systematic review of loneliness conceptualization and intervention strategies

por Gómez-Zúñiga, Beni, Pousada, Modesta, Armayones, Manuel
Publicado 2023

The Role of Parent/Caregiver with Children Affected by Rare Diseases: Navigating between Love and Fear

por Gómez-Zúñiga, Beni, Pulido, Rafael, Pousada, Modesta, Armayones, Manuel
Publicado 2021

ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective

por Gómez-Zúñiga, Beni, Fernandez-Luque, Luis, Pousada, Modesta, Hernández-Encuentra, Eulàlia, Armayones, Manuel
Publicado 2012

Mining Facebook Data of People with Rare Diseases: A Content-Based and Temporal Analysis

por Subirats, Laia, Reguera, Natalia, Bañón, Antonio Miguel, Gómez-Zúñiga, Beni, Minguillón, Julià, Armayones, Manuel
Publicado 2018

The experience of parents of children with rare diseases when communicating with healthcare professionals: towards an integrative theory of trust

por Gómez-Zúñiga, Beni, Pulido Moyano, Rafael, Pousada Fernández, Modesta, García Oliva, Alicia, Armayones Ruiz, Manuel
Publicado 2019

APTIC: a social network to improve the quality of life of members of patients' associations

por Armayones, Manuel, Hernández-Encuentra, Eulàlia, Gómez-Zúñiga, Beni, Guillamon, Noemí, Ontiveros, Gerardo, Bosque, Ana, Nafría, Begonya
Publicado 2010

Improving the Quality of Life of Family Caregivers of People with Alzheimer's Disease through Virtual Communities of Practice: A Quasiexperimental Study

por Romero-Mas, Montse, Ramon-Aribau, Anna, de Souza, Dyego Leandro Bezerra, Cox, Andrew M., Gómez-Zúñiga, Beni
Publicado 2021

Guiametabolica.org: empowerment through internet tools in inherited metabolic diseases

por Armayones, Manuel, Vilaseca, M Antònia, Cutillas, Júlia, Fàbrega, Jordi, Fernández, Jorge Juan, García, Mei, Egea, Natàlia, Pousada, Modesta, Gómez-Zuñiga, Beni, Pérez-Payarols, Jaume, Artuch, Rafael, Palau, Francesc, Serrano, Mercedes
Publicado 2012