Lived experiences of individuals with cystic fibrosis on CFTR-modulators

por Page, Annelise, Goldenberg, Aaron, Matthews, Anne L.
Publicado 2022

Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism

por Garrison, Nanibaa’ A., Brothers, Kyle B., Goldenberg, Aaron J., Lynch, John A.
Publicado 2019

Genomics and Newborn Screening: Perspectives of Public Health Programs

por Goldenberg, Aaron J., Ponsaran, Roselle, Gaviglio, Amy, Simancek, Dalton, Tarini, Beth A.
Publicado 2022

Genomics and Public Health: Development of Web-based Training Tools for Increasing Genomic Awareness

por Kardia, Sharon LR, Bodzin, Jennifer, Goldenberg, Aaron, Citrin, Toby, Raup, Sarah F, Bach, Janice V
Publicado 2005

Genomic newborn screening: public health policy considerations and recommendations

por Friedman, Jan M., Cornel, Martina C., Goldenberg, Aaron J., Lister, Karla J., Sénécal, Karine, Vears, Danya F.
Publicado 2017

Parental Depression and Anxiety Associated with Newborn Bloodspot Screening for Rare and Variable-Onset Disorders

por Boychuk, Natalie A., Mulrooney, Niamh S., Kelly, Nicole R., Goldenberg, Aaron J., Silver, Ellen J., Wasserstein, Melissa P.
Publicado 2022

“It seems like COVID-19 now is the only disease present on Earth”: living with a rare or undiagnosed disease during the COVID-19 pandemic

por Halley, Meghan C., Stanley, Talia, Maturi, Jay, Goldenberg, Aaron J., Bernstein, Jonathan A., Wheeler, Matthew T., Tabor, Holly K.
Publicado 2021

Willingness to Participate in a National Precision Medicine Cohort: Attitudes of Chronic Kidney Disease Patients at a Cleveland Public Hospital

por Cooke Bailey, Jessica N., Crawford, Dana C., Goldenberg, Aaron, Slaven, Anne, Pencak, Julie, Schachere, Marleen, Bush, William S., Sedor, John R., O’Toole, John F.
Publicado 2018

Duchenne Muscular Dystrophy Newborn Screening, a Case Study for Examining Ethical and Legal Issues for Pilots for Emerging Disorders: Considerations and Recommendations

por Lloyd-Puryear, Michele A., Crawford, Thomas O., Brower, Amy, Stephenson, Kristin, Trotter, Tracy, Goldman, Edward, Goldenberg, Aaron, Howell, R. Rodney, Kennedy, Annie, Watson, Michael
Publicado 2018

IRB practices and policies regarding the secondary research use of biospecimens

por Goldenberg, Aaron J, Maschke, Karen J, Joffe, Steven, Botkin, Jeffrey R, Rothwell, Erin, Murray, Thomas H, Anderson, Rebecca, Deming, Nicole, Rosenthal, Beth F, Rivera, Suzanne M
Publicado 2015

Ethical issues related to clinical research and rare diseases: 15th Gordon L. Snider Critical Issues Workshop, April 1, 2016, Bethesda, Maryland

por Coors, Marilyn, Bauer, Larry, Edwards, Kelly, Erickson, Karen, Goldenberg, Aaron, Goodale, John, Goodman, Kenneth, Grady, Christine, Mannino, David, Wanner, Adam, Wilson, Todd, Yarborough, Mark, Zirkle, Maryan
Publicado 2017

A Newborn Screening Education Best Practices Framework: Development and Adoption

por Evans, Adrianna, LeBlanc, Keri, Bonhomme, Natasha, Shone, Scott M., Gaviglio, Amy, Freedenberg, Debra, Penn, Jeremy, Johnson, Carol, Vogel, Beth, Dolan, Siobhan M., Goldenberg, Aaron J.
Publicado 2019

Practical Barriers and Ethical Challenges in Genetic Data Sharing

por Simpson, Claire L., Goldenberg, Aaron J., Culverhouse, Rob, Daley, Denise, Igo, Robert P., Jarvik, Gail P., Mandal, Diptasri M., Mascalzoni, Deborah, Montgomery, Courtney Gray, Pierce, Brandon L., Plaetke, Rosemarie, Shete, Sanjay, Goddard, Katrina A. B., Stein, Catherine M.
Publicado 2014

Population-Based Screening of Newborns: Findings From the NBS Expansion Study (Part One)

por Brower, Amy, Chan, Kee, Williams, Marc, Berry, Susan, Currier, Robert, Rinaldo, Piero, Caggana, Michele, Gaviglio, Amy, Wilcox, William, Steiner, Robert, Holm, Ingrid A., Taylor, Jennifer, Orsini, Joseph J., Brunelli, Luca, Adelberg, Joanne, Bodamer, Olaf, Viall, Sarah, Scharfe, Curt, Wasserstein, Melissa, Chen, Jin Y., Escolar, Maria, Goldenberg, Aaron, Swoboda, Kathryn, Ficicioglu, Can, Matern, Dieter, Lee, Rachel, Watson, Michael
Publicado 2022