An Ethics Framework for Evaluating Ownership Practices in Biomedical Citizen Science

por GUERRINI, CHRISTI J., MCGUIRE, AMY L.
Publicado 2022

Pirate Talk: Navigating Practical, Ethical, and Legal Issues Associated with Biomedical Citizen Science Interview Studies

por GUERRINI, CHRISTI J., BROOKS, WHITNEY BASH, MCCURDY, SHERYL A.
Publicado 2022

Development of an Open Database of Genes Included in Hereditary Cancer Genetic Testing Panels Available From Major Sources in the US

por Geary, Janis, Majumder, Mary, Guerrini, Christi, Cook-Deegan, Robert
Publicado 2022

Essential, not peripheral: Addressing health care workers’ mental health concerns during the COVID‐19 pandemic

por Guerrini, Christi J., Storch, Eric A., McGuire, Amy L.
Publicado 2020

Should police have access to genetic genealogy databases? Capturing the Golden State Killer and other criminals using a controversial new forensic technique

por Guerrini, Christi J., Robinson, Jill O., Petersen, Devan, McGuire, Amy L.
Publicado 2018

A best–worst scaling experiment to prioritize concern about ethical issues in citizen science reveals heterogeneity on people-level v. data-level issues

por Guerrini, Christi J., Crossnohere, Norah L., Rasmussen, Lisa, Bridges, John F. P.
Publicado 2021

Four misconceptions about investigative genetic genealogy

por Guerrini, Christi J, Wickenheiser, Ray A, Bettinger, Blaine, McGuire, Amy L, Fullerton, Stephanie M
Publicado 2021

Constraints on gene patent protection fuel secrecy concerns: a qualitative study

por Guerrini, Christi J, McGuire, Amy L, Majumder, Mary A, Bollinger, Juli M, Rowan, Paul J
Publicado 2017

Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?

por Guerrini, Christi J., Lewellyn, Meaganne, Majumder, Mary A., Trejo, Meredith, Canfield, Isabel, McGuire, Amy L.
Publicado 2019

“Idealists and capitalists”: ownership attitudes and preferences in genomic citizen science

por Guerrini, Christi J., Contreras, Jorge L., Brooks, Whitney Bash, Canfield, Isabel, Trejo, Meredith, McGuire, Amy L.
Publicado 2022

Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi

por Robinson, Jill O, Daoud, Amira, Geary, Janis, Rahimzadeh, Vasiliki, Bollinger, Juli, Guerrini, Christi J, Cook-Deegan, Robert, McGuire, Amy L, Majumder, Mary A
Publicado 2023

Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation

por Majumder, Mary A., Blank, Matthew L., Geary, Janis, Bollinger, Juli M., Guerrini, Christi J., Robinson, Jill Oliver, Canfield, Isabel, Cook-Deegan, Robert, McGuire, Amy L.
Publicado 2021

Fresh takes on five health data sharing domains: Quality, privacy, equity, incentives, and sustainability

por Guerrini, Christi J., Majumder, Mary A., Robinson, Jill O., Cook-Deegan, Robert, Blank, Matthew, Bollinger, Juli, Geary, Janis, Gutierrez, Amanda M., Shrikant, Maya, McGuire, Amy L.
Publicado 2023

Psychological Distress Among the U.S. General Population During the COVID-19 Pandemic

por Guerrini, Christi J., Schneider, Sophie C., Guzick, Andrew G., Amos Nwankwo, Gifty N., Canfield, Isabel, Fedson, Savitri, Gutierrez, Amanda M., Sheu, Jessica C., Song, Amber Y., Villagran, Alexandra M., McGuire, Amy L., Storch, Eric A.
Publicado 2021