Light Chain Amyloidosis: Patient Experience Survey from the Amyloidosis Research Consortium

por Lousada, Isabelle, Comenzo, Raymond L., Landau, Heather, Guthrie, Spencer, Merlini, Giampaolo
Publicado 2015

Patient experience with hereditary and senile systemic amyloidoses: a survey from the Amyloidosis Research Consortium

por Lousada, Isabelle, Comenzo, Raymond L, Landau, Heather, Guthrie, Spencer, Merlini, Giampaolo
Publicado 2015

The burden of amyloid light chain amyloidosis on health-related quality of life

por Bayliss, Martha, McCausland, Kristen L., Guthrie, Spencer D., White, Michelle K.
Publicado 2017

Psychometric validation of the SF-36 Health Survey in light chain amyloidosis: results from community-based and clinic-based samples

por White, Michelle K, McCausland, Kristen L, Sanchorawala, Vaishali, Guthrie, Spencer D, Bayliss, Martha S
Publicado 2017

Patient-reported burden of hereditary transthyretin amyloidosis on functioning and well-being

por Lovley, Andrew, Raymond, Kimberly, Guthrie, Spencer D., Pollock, Michael, Sanchorawala, Vaishali, White, Michelle K.
Publicado 2021

A longitudinal evaluation of health‐related quality of life in patients with AL amyloidosis: associations with health outcomes over time

por Sanchorawala, Vaishali, McCausland, Kristen L., White, Michelle K., Bayliss, Martha S., Guthrie, Spencer D., Lo, Stephen, Skinner, Martha
Publicado 2017

Light Chain (AL) Amyloidosis: The Journey to Diagnosis

por McCausland, Kristen L., White, Michelle K., Guthrie, Spencer D., Quock, Tiffany, Finkel, Muriel, Lousada, Isabelle, Bayliss, Martha S.
Publicado 2017

Content validation of the SF-36v2® health survey with AL amyloidosis patients

por White, Michelle K., Bayliss, Martha S., Guthrie, Spencer D., Raymond, Kimberly P., Rizio, Avery A., McCausland, Kristen L.
Publicado 2017

The Clinical and Economic Burden of Newly Diagnosed Hereditary Transthyretin (ATTRv) Amyloidosis: A Retrospective Analysis of Claims Data

por Reddy, Sheila R., Chang, Eunice, Tarbox, Marian H., Broder, Michael S., Tieu, Ryan S., Guthrie, Spencer, Vera-Llonch, Montserrat, Pollock, Michael R.
Publicado 2020

Clinical Confirmation of Pan-Amyloid Reactivity of Radioiodinated Peptide (124)I-p5+14 (AT-01) in Patients with Diverse Types of Systemic Amyloidosis Demonstrated by PET/CT Imaging

por Martin, Emily B., Stuckey, Alan, Powell, Dustin, Lands, Ronald, Whittle, Bryan, Wooliver, Craig, Macy, Sallie, Foster, James S., Guthrie, Spencer, Kennel, Stephen J., Wall, Jonathan S.
Publicado 2023

Burden of hereditary transthyretin amyloidosis on quality of life

por Yarlas, Aaron, Gertz, Morie A., Dasgupta, Noel R., Obici, Laura, Pollock, Michael, Ackermann, Elizabeth J., Lovley, Andrew, Kessler, Asia Sikora, Patel, Pankaj A., White, Michelle K., Guthrie, Spencer D.
Publicado 2019

mNIS+7 and lower limb function in inotersen treatment of hereditary transthyretin‐mediated amyloidosis

por Dyck, P. James B., Kincaid, John C., Wiesman, Janice F., Polydefkis, Michael, Litchy, William J., Mauermann, Michelle L., Ackermann, Elizabeth J., Guthrie, Spencer, Pollock, Michael, Jung, Shiangtung W., Baker, Brenda F., Dyck, Peter J.
Publicado 2020

Birtamimab plus standard of care in light-chain amyloidosis: the phase 3 randomized placebo-controlled VITAL trial

por Gertz, Morie A., Cohen, Adam D., Comenzo, Raymond L., Kastritis, Efstathios, Landau, Heather J., Libby, Edward N., Liedtke, Michaela, Sanchorawala, Vaishali, Schönland, Stefan, Wechalekar, Ashutosh, Zonder, Jeffrey A., Palladini, Giovanni, Walling, Jackie, Guthrie, Spencer, Nie, Christie, Karp, Carol, Jin, Yuying, Kinney, Gene G., Merlini, Giampaolo
Publicado 2023

Neuropathy symptom and change: Inotersen treatment of hereditary transthyretin amyloidosis

por Dyck, P. James B., Coelho, Teresa, Waddington Cruz, Marcia, Brannagan, Thomas H., Khella, Sami, Karam, Chafic, Berk, John L., Polydefkis, Michael J., Kincaid, John C., Wiesman, Janice F., Litchy, William J., Mauermann, Michelle L., Ackermann, Elizabeth J., Baker, Brenda F., Jung, Shiangtung W., Guthrie, Spencer, Pollock, Michael, Dyck, Peter J.
Publicado 2020

Inotersen preserves or improves quality of life in hereditary transthyretin amyloidosis

por Coelho, Teresa, Yarlas, Aaron, Waddington-Cruz, Marcia, White, Michelle K., Sikora Kessler, Asia, Lovley, Andrew, Pollock, Michael, Guthrie, Spencer, Ackermann, Elizabeth J., Hughes, Steven G., Karam, Chafic, Khella, Sami, Gertz, Morie, Merlini, Giampaolo, Obici, Laura, Schmidt, Hartmut H., Polydefkis, Michael, Dyck, P. James B., Brannagan III, Thomas H., Conceição, Isabel, Benson, Merrill D., Berk, John L.
Publicado 2019