The effectiviness of an innovative web-based application to monitor HRQOL problems in paediatric rheumatology clinical practice

por Haverman, L, van Rossum, MAJ, Heymans, HSA, Kuijpers, TW, Grootenhuis, MA
Publicado 2011

Dutch norms for the Strengths and Difficulties Questionnaire (SDQ) – parent form for children aged 2–18 years

por Maurice-Stam, H., Haverman, L., Splinter, A., van Oers, H. A., Schepers, S. A., Grootenhuis, M. A.
Publicado 2018

Effectiveness of time-limited eye movement desensitization reprocessing therapy for parents of children with a rare life-limiting illness: a randomized clinical trial

por Conijn, T., De Roos, C., Vreugdenhil, H. J. I., Van Dijk-Lokkart, E. M., Wijburg, F. A., Haverman, L.
Publicado 2022

Health related quality of life in Dutch infants, toddlers, and young children

por Schepers, S. A., van Oers, H. A., Maurice-Stam, H., Huisman, J., Verhaak, C. M., Grootenhuis, M. A., Haverman, L.
Publicado 2017

PB2227: HEALTH-RELATED QUALITY OF LIFE OVER TIME IN PEDIATRIC PATIENTS WITH SICKLE CELL DISEASE ADMITTED FOR VASO-OCCLUSIVE CRISIS.

por Vuong, C., Moussa, I., Haverman, L., Rettenbacher, E., Heijboer, H., Twisk, J., Fijnvandraat, K., de Groot-Eckhardt, C. L.
Publicado 2022

5599344 IMPACT OF HOSPITAL ADMISSION FOR VASO-OCCLUSIVE CRISIS ON HEALTH-RELATED QUALITY OF LIFE IN CHILDREN WITH SICKLE CELL DISEASE

por Vuong, C., Moussa, I., Muilekom, M.M., Heijboer, H., Rettenbacher, E., Haverman, L., Twisk, J., Fijnvandraat, K., Eckhardt, C.L.
Publicado 2023

Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders

por Limperg, P. F., Haverman, L., Maurice-Stam, H., Coppens, M., Valk, C., Kruip, M. J. H. A., Eikenboom, J., Peters, M., Grootenhuis, M. A.
Publicado 2017

5606726 IMPACT OF ALLOGENEIC STEM CELL TRANSPLANTATION ON PHYSICAL, MENTAL, AND SOCIAL HEALTH OF ADULT SICKLE CELL DISEASE PATIENTS: A MIXED-METHODS STUDY

por Dovern, E., Nijland, S.J.A., van Muilekom, M.M., Suijk, E.M.J., Hoogendoorn, G.M., Mekelenkamp, H., Biemond, B.J., Haverman, L., Nur, E.
Publicado 2023

Development of a condition‐specific patient‐reported outcome measure for measuring symptoms and appearance in vascular malformations: the OVAMA questionnaire

por Lokhorst, M.M., Horbach, S.E.R., Young‐Afat, D.A., Stor, M.L.E., Haverman, L., Spuls, P.I., van der Horst, C.M.A.M.
Publicado 2021

Pyridoxine-dependent epilepsy (PDE-ALDH7A1) in adulthood: A Dutch pilot study exploring clinical and patient-reported outcomes

por Tseng, L.A., Teela, L., Janssen, M.C., Bok, L.A., Willemsen, M.A.A.P., Neuteboom, R.F., Haverman, L., Gospe, S.M., Coughlin, C.R., van Karnebeek, C.D.M.
Publicado 2022

Distress and post-traumatic stress in parents of patients with congenital gastrointestinal malformations: a cross-sectional cohort study

por Roorda, D., van der Steeg, A. F. W., van Dijk, M., Derikx, J. P. M., Gorter, R. R., Rotteveel, J., van Goudoever, J. B., van Heurn, L. W. E., Oosterlaan, J., Haverman, L.
Publicado 2022