Shaping national plans and strategies for rare diseases in Europe: past, present, and future

por Hedley, Victoria, Bottarelli, Valentina, Weinman, Ariane, Taruscio, Domenica
Publicado 2021

The context for the thematic grouping of rare diseases to facilitate the establishment of European Reference Networks

por Evangelista, Teresinha, Hedley, Victoria, Atalaia, Antonio, Johnson, Matt, Lynn, Stephen, Le Cam, Yann, Bushby, Kate
Publicado 2016

Together4RD position statement on collaboration between European reference networks and industry

por Hedley, Victoria, Bolz-Johnson, Matt, Hernando, Ines, Kenward, Rosalind, Nabbout, Rima, Romero, Clara, Schaefer, Franz, Upadhyaya, Sheela
Publicado 2023