Development of a Provisional Model to Improve Transitional Care for Female Adolescents with a Rare Genital Malformation as an Example for Orphan Diseases

por Simoes, Elisabeth, Kronenthaler, Andrea, Emrich, Christine, Rieger, Monika A., Rall, Kristin Katharina, Schäffeler, Norbert, Hiltner, Hanna, Ueding, Esther, Brucker, Sara Y.
Publicado 2014

Information ranks highest: Expectations of female adolescents with a rare genital malformation towards health care services

por Simoes, Elisabeth, Sokolov, Alexander N., Kronenthaler, Andrea, Hiltner, Hanna, Schaeffeler, Norbert, Rall, Katharina, Ueding, Esther, Rieger, Monika A., Wagner, Anke, Poesch, Leonie S., Baur, Marie-Christin, Kittel, Judith, Brucker, Sara Y.
Publicado 2017

Rare genital malformations in women’s health research: sociodemographic, regional, and disease-related characteristics of patients with Mayer-Rokitansky-Küster-Hauser syndrome

por Brucker, Sara Yvonne, Pösch, Leonie-Sophia, Graf, Joachim, Sokolov, Alexander N., Schaeffeler, Norbert, Kronenthaler, Andrea, Hiltner, Hanna, Wagner, Anke, Ueding, Esther, Rieger, Monika A., Schöller, Dorit, Stefanescu, Diana, Rall, Kristin Katharina, Wallwiener, Diethelm, Simoes, Elisabeth
Publicado 2020