European Network of Rare Disease Help Lines (ENRDHLs) – caller profile analysis 2013

por Iskrov, Georgi, Houÿez, François
Publicado 2014

Patient Contribution to the Development and Safe Use of Medicines During the Covid-19 Pandemic

por Pitts, Peter J., Houÿez, François
Publicado 2020

Correction to: Patient Contribution to the Development and Safe Use of Medicines During the Covid-19 Pandemic

por Pitts, Peter J., Houÿez, François
Publicado 2020

The importance of helplines in National Plans

por Mazzucato, Monica, Houyez, François, Facchin, Paola
Publicado 2014

Health care cost-containment measures in the context of the economic crisis: impact analysis

por Houÿez, François, Tessier, Ludovic, Synodinos, Dimitrios
Publicado 2014

Compassionate use programmes for rare diseases: proposals for actions

por Houÿez, François, Bélorgey, Chantal, North, Arielle, Czondi, Etelka, Lipucci di Paola, Michele
Publicado 2012

A European Network of Email and Telephone Help Lines Providing Information and Support on Rare Diseases: Results From a 1-Month Activity Survey

por Houyez, Francois, Sanchez de Vega, Rosa, Brignol, Tuy Nga, Mazzucato, Monica, Polizzi, Agata
Publicado 2014

Factors Influencing the Use of a Mobile App for Reporting Adverse Drug Reactions and Receiving Safety Information: A Qualitative Study

por de Vries, Sieta T., Wong, Lisa, Sutcliffe, Alastair, Houÿez, François, Ruiz, Carmen Lasheras, Mol, Peter G. M.
Publicado 2016

Interest in a Mobile App for Two-Way Risk Communication: A Survey Study Among European Healthcare Professionals and Patients

por de Vries, Sieta T., Denig, Petra, Lasheras Ruiz, Carmen, Houÿez, François, Wong, Lisa, Sutcliffe, Alastair, Mol, Peter G. M.
Publicado 2018

Potential Barriers of Patient Involvement in Health Technology Assessment in Central and Eastern European Countries

por Dimitrova, Maria, Jakab, Ivett, Mitkova, Zornitsa, Kamusheva, Maria, Tachkov, Konstantin, Nemeth, Bertalan, Zemplenyi, Antal, Dawoud, Dalia, Delnoij, Diana M. J., Houýez, François, Kalo, Zoltan
Publicado 2022

Repurposing of Medicines in the EU: Launch of a Pilot Framework

por Asker-Hagelberg, Charlotte, Boran, Tomas, Bouygues, Christelle, Eskola, Sini Marika, Helmle, Laszlo, Hernández, César, Houýez, François, Lee, Helen, Lingri, Dimitra D., Louette, Laurent, Meheus, Lydie, Penninckx, Wim, Stepniewska, Beata
Publicado 2022

Collaboration between patient organisations and a clinical research sponsor in a rare disease condition: learnings from a community advisory board and best practice for future coll...

por Roennow, Annelise, Sauvé, Maureen, Welling, Joep, Riggs, Robert J, Kennedy, Ann Tyrrell, Galetti, Ilaria, Brown, Edith, Leite, Catarina, Gonzalez, Alex, Portales Guiraud, Alexandra Paula, Houÿez, François, Camp, Rob, Gilbert, Annie, Gahlemann, Martina, Moros, Lizette, Luna Flores, Jose Luis, Schmidt, Friedrich, Sauter, Wiebke, Finnern, Henrik
Publicado 2020

The role of stakeholder involvement in the evolving EU HTA process: Insights generated through the European Access Academy’s multi-stakeholder pre-convention questionnaire

por Van Haesendonck, Lauren, Ruof, Jörg, Desmet, Thomas, Van Dyck, Walter, Simoens, Steven, Huys, Isabelle, Giuliani, Rosa, Toumi, Mondher, Dierks, Christian, Dierks, Juliana, Cardone, Antonella, Houÿez, Francois, Pavlovic, Mira, Berntgen, Michael, Mol, Peter G.M., Schiel, Anja, Goettsch, Wim, Gianfrate, Fabrizio, Capri, Stefano, Ryan, James, Ducournau, Pierre, Solà-Morales, Oriol, Julian, Elaine
Publicado 2023

Communicating for the Safe Use of Medicines: Progress and Directions for the 2020s Promoted by the Special Interest Group of the International Society of Pharmacovigilance

por Bahri, Priya, Bowring, Geoffrey, Edwards, Brian D., Anton, Christopher, Aronson, Jeffrey K., Caro-Rojas, Angela, Hugman, Bruce P. J., Mol, Peter G., Trifirò, Gianluca, Ilic, Katarina, Daghfous, Riadh, Fermont, Irene, Furlan, Giovanni, Gaissmaier, Wolfgang, Geer, Mohammad Ishaq, Hartigan-Go, Kenneth Y., Houÿez, François, Neth, Hansjörg, Norgela, Gediminas, Oppamayun, Yaowares, Raynor, D. K. Theo, Bouhlel, Mehdi, Santoro, Federica, Sultana, Janet
Publicado 2023

Recommendations for patient involvement in health technology assessment in Central and Eastern European countries

por Jakab, Ivett, Dimitrova, Maria, Houÿez, François, Bereczky, Tamás, Fövényes, Miroslava, Maravic, Zorana, Belina, Ivica, Andriciuc, Christian, Tóth, Krisztina, Piniazhko, Oresta, Hren, Rok, Gutierrez-Ibarluzea, Iñaki, Czech, Marcin, Tesar, Tomas, Niewada, Maciej, Lorenzovici, László, Kamusheva, Maria, Manova, Manoela, Savova, Alexandra, Mitkova, Zornitsa, Tachkov, Konstantin, Németh, Bertalan, Petykó, Zsuzsanna Ida, Dawoud, Dalia, Delnoij, Diana, Knies, Saskia, Goettsch, Wim, Kaló, Zoltán
Publicado 2023

Standardised data on initiatives—STARDIT: Beta version

por Nunn, Jack S., Shafee, Thomas, Chang, Steven, Stephens, Richard, Elliott, Jim, Oliver, Sandy, John, Denny, Smith, Maureen, Orr, Neil, Preston, Jennifer, Borthwick, Josephine, van Vlijmen, Thijs, Ansell, James, Houyez, Francois, de Sousa, Maria Sharmila Alina, Plotz, Roan D., Oliver, Jessica L., Golumbic, Yaela, Macniven, Rona, Wines, Samuel, Borda, Ann, da Silva Hyldmo, Håkon, Hsing, Pen-Yuan, Denis, Lena, Thompson, Carolyn
Publicado 2022