Education and employment status among adults with Loeys-Dietz syndrome and vascular Ehlers-Danlos syndrome in Norway, a questionnaire based study

por Johansen, Heidi, Velvin, Gry, Lidal, Ingeborg B.
Publicado 2022

Experienced fatigue in people with rare disorders: a scoping review on characteristics of existing research

por Bathen, Trine, Johansen, Heidi, Strømme, Hilde, Velvin, Gry
Publicado 2022

Fatigue in patients with syndromic heritable thoracic aortic disease: a systematic review of the literature and a qualitative study of patients’ experiences and perceptions

por Velvin, Gry, Johansen, Heidi, Østertun-Geirdal, Amy, Bathen, Trine
Publicado 2023

A scoping review presenting a wide variety of research on paediatric and adolescent patients with Marfan syndrome

por Lidal, Ingeborg Beate, Bathen, Trine, Johansen, Heidi, Velvin, Gry
Publicado 2020

Physical fitness and activity level in Norwegian adults with achondroplasia

por de Vries, Olga Marieke, Johansen, Heidi, Fredwall, Svein Otto
Publicado 2020

Health-related quality of life for children with rare diagnoses, their parents’ satisfaction with life and the association between the two

por Johansen, Heidi, Dammann, Brede, Andresen, Inger-Lise, Fagerland, Morten Wang
Publicado 2013

ADULTS WITH LOEYS-DIETZ SYNDROME AND VASCULAR EHLERS-DANLOS SYNDROME: A CROSS-SECTIONAL STUDY OF LIFE SATISFACTION

por JOHANSEN, Heidi, VELVIN, Gry, FUGL-MEYER, Kerstin, LIDAL, Ingeborg Beate
Publicado 2021

Health status of adults with Short Stature: A comparison with the normal population and one well-known chronic disease (Rheumatoid Arthritis)

por Johansen, Heidi, Andresen, Inger-Lise, Naess, Eva E, Hagen, Kare Birger
Publicado 2007

Chronic pain and fatigue in adults with congenital unilateral upper limb deficiency in Norway. A cross-sectional study

por Johansen, Heidi, Bathen, Trine, Andersen, Liv Øinæs, Rand-Hendriksen, Svend, Østlie, Kristin
Publicado 2018

Education and work participation among adults with congenital unilateral upper limb deficiency in Norway: A cross-sectional study

por Johansen, Heidi, Bathen, Trine, Andersen, Liv Øinæs, Rand-Hendriksen, Svend, Østlie, Kristin
Publicado 2018

Sodium and Potassium Intake Assessed by Spot and 24-h Urine in the Population-Based Tromsø Study 2015–2016

por Meyer, Haakon E., Johansson, Lars, Eggen, Anne Elise, Johansen, Heidi, Holvik, Kristin
Publicado 2019

Current knowledge of medical complications in adults with achondroplasia: A scoping review

por Fredwall, Svein O., Maanum, Grethe, Johansen, Heidi, Snekkevik, Hildegun, Savarirayan, Ravi, Lidal, Ingeborg B.
Publicado 2019

The seventh survey of the Tromsø Study (Tromsø7) 2015–2016: study design, data collection, attendance, and prevalence of risk factors and disease in a multipurpose population-based...

por Hopstock, Laila A., Grimsgaard, Sameline, Johansen, Heidi, Kanstad, Kristin, Wilsgaard, Tom, Eggen, Anne Elise
Publicado 2022

Work participation in adults with rare genetic diseases - a scoping review

por Velvin, Gry, Dammann, Brede, Haagensen, Trond, Johansen, Heidi, Strømme, Hilde, Geirdal, Amy Østertun, Bathen, Trine
Publicado 2023

Know Your Heart: Rationale, design and conduct of a cross-sectional study of cardiovascular structure, function and risk factors in 4500 men and women aged 35-69 years from two Rus...

por Cook, Sarah, Malyutina, Sofia, Kudryavtsev, Alexander V, Averina, Maria, Bobrova, Natalia, Boytsov, Sergey, Brage, Soren, Clark, Taane G., Diez Benavente, Ernest, Eggen, Anne Elise, Hopstock, Laila A, Hughes, Alun, Johansen, Heidi, Kholmatova, Kamila, Kichigina, Anastasiya, Kontsevaya, Anna, Kornev, Michael, Leong, Darryl, Magnus, Per, Mathiesen, Ellisiv, McKee, Martin, Morgan, Katy, Nilssen, Odd, Plakhov, Ilya, Quint, Jennifer K, Rapala, Alicja, Ryabikov, Andrey, Saburova, Lyudmila, Schirmer, Henrik, Shapkina, Marina, Shiekh, Suhail, Shkolnikov, Vladimir M, Stylidis, Michael, Voevoda, Michael, Westgate, Kate, Leon, David A
Publicado 2018