Patient Centricity in Patient Preference Studies: The Patient Perspective

por van Overbeeke, Eline, Vanbinst, Inès, Jimenez-Moreno, Aura Cecilia, Huys, Isabelle
Publicado 2020

Willingness to Wait for a Vaccine Against COVID-19: Results of a Preference Survey

por Tervonen, Tommi, Jimenez-Moreno, Aura Cecilia, Krucien, Nicolas, Gelhorn, Heather, Marsh, Kevin, Heidenreich, Sebastian
Publicado 2020

Association of sleep, screen time and physical activity with overweight and obesity in Mexico

por Kolovos, Spyros, Jimenez-Moreno, Aura Cecilia, Pinedo-Villanueva, Rafael, Cassidy, Sophie, Zavala, Gerardo A.
Publicado 2019

Analyzing walking speeds with ankle and wrist worn accelerometers in a cohort with myotonic dystrophy

por Jimenez-Moreno, Aura Cecilia, Charman, Sarah J., Nikolenko, Nikoletta, Larweh, Maxwell, Turner, Chris, Gorman, Grainne, Lochmüller, Hanns, Catt, Michael
Publicado 2018

Measuring Habitual Physical Activity in Neuromuscular Disorders: A Systematic Review

por Jimenez-Moreno, Aura Cecilia, Newman, Jane, Charman, Sarah J., Catt, Michael, Trenell, Michael I., Gorman, Grainne S., Hogrel, Jean-Yves, Lochmüller, Hanns
Publicado 2017

Analysis of the functional capacity outcome measures for myotonic dystrophy

por Jimenez‐Moreno, Aura Cecilia, Nikolenko, Nikoletta, Kierkegaard, Marie, Blain, Alasdair P., Newman, Jane, Massey, Charlotte, Moat, Dionne, Sodhi, Jas, Atalaia, Antonio, Gorman, Grainne S., Turner, Chris, Lochmüller, Hanns
Publicado 2019

Associations Between Variant Repeat Interruptions and Clinical Outcomes in Myotonic Dystrophy Type 1

por Wenninger, Stephan, Cumming, Sarah A., Gutschmidt, Kristina, Okkersen, Kees, Jimenez-Moreno, Aura Cecilia, Daidj, Ferroudja, Lochmüller, Hanns, Hogarth, Fiona, Knoop, Hans, Bassez, Guillaume, Monckton, Darren G., van Engelen, Baziel G.M., Schoser, Benedikt
Publicado 2021

The UK Myotonic Dystrophy Patient Registry: facilitating and accelerating clinical research

por Wood, Libby, Cordts, Isabell, Atalaia, Antonio, Marini-Bettolo, Chiara, Maddison, Paul, Phillips, Margaret, Roberts, Mark, Rogers, Mark, Hammans, Simon, Straub, Volker, Petty, Richard, Orrell, Richard, Monckton, Darren G., Nikolenko, Nikoletta, Jimenez-Moreno, Aura Cecilia, Thompson, Rachel, Hilton-Jones, David, Turner, Chris, Lochmüller, Hanns
Publicado 2017

A study protocol for quantifying patient preferences in neuromuscular disorders: a case study of the IMI PREFER Project

por Jimenez-Moreno, Aura Cecilia, Pinto, Cathy Anne, Levitan, Bennett, Whichello, Chiara, Dyer, Christine, Van Overbeeke, Eline, de Bekker-Grob, Esther, Smith, Ian, Huys, Isabelle, Viberg Johansson, Jennifer, Adcock, Kate, Bullock, Kristin, Soekhai, Vikas, Yuan, Zhong, Lochmuller, Hanns, de Wit, Ardine, Gorman, Grainne S.
Publicado 2020

Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease

por Wood, Libby, Bassez, Guillaume, Bleyenheuft, Corinne, Campbell, Craig, Cossette, Louise, Jimenez-Moreno, Aura Cecilia, Dai, Yi, Dawkins, Hugh, Manera, Jorge Alberto Diaz, Dogan, Celine, el Sherif, Rasha, Fossati, Barbara, Graham, Caroline, Hilbert, James, Kastreva, Kristinia, Kimura, En, Korngut, Lawrence, Kostera-Pruszczyk, Anna, Lindberg, Christopher, Lindvall, Bjorn, Luebbe, Elizabeth, Lusakowska, Anna, Mazanec, Radim, Meola, Giovani, Orlando, Liannna, Takahashi, Masanori P., Peric, Stojan, Puymirat, Jack, Rakocevic-Stojanovic, Vidosava, Rodrigues, Miriam, Roxburgh, Richard, Schoser, Benedikt, Segovia, Sonia, Shatillo, Andriy, Thiele, Simone, Tournev, Ivailo, van Engelen, Baziel, Vohanka, Stanislav, Lochmüller, Hanns
Publicado 2018

Correction to: Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease

por Wood, Libby, Bassez, Guillaume, Bleyenheuft, Corinne, Campbell, Craig, Cossette, Louise, Jimenez-Moreno, Aura Cecilia, Dai, Yi, Dawkins, Hugh, Díaz-Manera, Jordi, Dogan, Celine, el Sherif, Rasha, Fossati, Barbara, Graham, Caroline, Hilbert, James, Kastreva, Kristinia, Kimura, En, Korngut, Lawrence, Kostera-Pruszczyk, Anna, Lindberg, Christopher, Lindvall, Bjorn, Luebbe, Elizabeth, Lusakowska, Anna, Mazanec, Radim, Meola, Giovani, Orlando, Liannna, Takahashi, Masanori P., Peric, Stojan, Puymirat, Jack, Rakocevic-Stojanovic, Vidosava, Rodrigues, Miriam, Roxburgh, Richard, Schoser, Benedikt, Segovia, Sonia, Shatillo, Andriy, Thiele, Simone, Tournev, Ivailo, van Engelen, Baziel, Vohanka, Stanislav, Lochmüller, Hanns
Publicado 2019