Development and Validation of a Genomic Knowledge Scale to Advance Informed Decision-Making Research in Genomic Sequencing

por Langer, Michelle M., Roche, Myra I., Brewer, Noel T., Berg, Jonathan S., Khan, Cynthia M., Leos, Cristina, Moore, Elizabeth, Brown, Michelle, Rini, Christine
Publicado 2017

The who, what and why of research participants’ intentions to request a broad range of secondary findings in a diagnostic genomic sequencing study

por Rini, Christine, Khan, Cynthia M., Moore, Elizabeth, Roche, Myra I., Evans, James P., Berg, Jonathan S., Powell, Bradford C., Corbie-Smith, Giselle, Foreman, Ann Katherine M., Griesemer, Ida, Lee, Kristy, O’Daniel, Julianne M., Henderson, Gail E.
Publicado 2017

Factors influencing NCGENES research participants’ requests for non-medically actionable secondary findings

por Roche, Myra I., Griesemer, Ida, Khan, Cynthia M., Moore, Elizabeth, Lin, Feng-Chang, O’Daniel, Julianne M., Foreman, Ann Katherine M., Lee, Kristy, Powell, Bradford C., Berg, Jonathan S., Evans, James P., Henderson, Gail E., Rini, Christine
Publicado 2018