Treat Iron-Related Childhood-Onset Neurodegeneration (TIRCON)—An International Network on Care and Research for Patients With Neurodegeneration With Brain Iron Accumulation (NBIA)...

por Karin, Ivan, Büchner, Boriana, Gauzy, Florence, Klucken, Angelika, Klopstock, Thomas
Publicado 2021

Patient and caregiver experiences with pantothenate kinase-associated neurodegeneration (PKAN): results from a patient community survey

por Klopstock, Thomas, Mercimek-Andrews, Saadet, Jurecka, Agnieszka, Wood, Patricia, Cwyl, Maciej, Klucken, Angelika, López, Antonio, Scalise, Roberta, Valle, Andrea, Mollet, Fatemeh, Perez-Duenas, Belen, Skowronska, Marta, Chroscinska-Krawczyk, Magdalena, Escolar, Maria Luisa, Wade, Anna, Rintell, David
Publicado 2023