Mold, Mycotoxins and a Dysregulated Immune System: A Combination of Concern?

por Kraft, Stephanie, Buchenauer, Lisa, Polte, Tobias
Publicado 2021

Patient priorities for fulfilling the principle of respect in research: findings from a modified Delphi study

por Kraft, Stephanie A., Duenas, Devan M., Shah, Seema K.
Publicado 2023

The evolving landscape of expanded carrier screening: challenges and opportunities

por Kraft, Stephanie A., Duenas, Devan, Wilfond, Benjamin S., Goddard, Katrina A. B.
Publicado 2018

Patient perspectives on how to demonstrate respect: Implications for clinicians and healthcare organizations

por Bridges, Celina, Duenas, Devan M., Lewis, Hannah, Anderson, Katherine, Opel, Douglas J., Wilfond, Benjamin S., Kraft, Stephanie A.
Publicado 2021

“I Don’t Want to be Henrietta Lacks”: Diverse Patient Perspectives on Donating Biospecimens for Precision Medicine Research

por Lee, Sandra S.-J., Cho, Mildred K., Kraft, Stephanie A., Varsava, Nina, Gillespie, Katie, Ormond, Kelly E., Wilfond, Benjamin S., Magnus, David
Publicado 2018

Assessing Parent Decisions About Child Participation in a Behavioral Health Intervention Study and Utility of Informed Consent Forms

por Kraft, Stephanie A., Porter, Kathryn M., Duenas, Devan M., Sullivan, Erin, Rowland, Maya, Saelens, Brian E., Wilfond, Benjamin S., Shah, Seema K.
Publicado 2020

Relationship building in pediatric research recruitment: Insights from qualitative interviews with research staff

por Kraft, Stephanie A., Porter, Kathryn M., Sullivan, Tara R., Anderson, Emily E., Garrison, Nanibaa’ A., Baker, Laura, Smith, Jodi M., Weiss, Elliott M.
Publicado 2022

Informed consent: Old and new challenges in the context of the COVID-19 pandemic

por Rothwell, Erin, Brassil, Donna, Barton-Baxter, Marietta, Brownley, Kimberly A., Dickert, Neal W., Ford, Daniel E., Kraft, Stephanie A., McCormick, Jennifer B., Wilfond, Benjamin S.
Publicado 2021

Research recruitment through the patient portal: perspectives of community focus groups in Seattle and Atlanta

por Porter, Kathryn M, Kraft, Stephanie A, Speight, Candace D, Duenas, Devan M, Niyibizi, Nyiramugisha K, Mitchell, Andrea, O’Connor, M Rebecca, Gregor, Charles, Liljenquist, Kendra, Shah, Seema K, Wilfond, Benjamin S, Dickert, Neal W
Publicado 2023

Conducting clinical genomics research during the COVID‐19 pandemic: Lessons learned from the CSER consortium experience

por Kraft, Stephanie A., Russell, Heidi, Bensen, Jeannette T., Bonini, Katherine E., Robinson, Jill O., Sahin‐Hodoglugil, Nuriye, Renna, Kathleen, Hindorff, Lucia A., Kaufman, Dave, Horowitz, Carol R., Waltz, Margaret, Zepp, Jamilyn M., Knight, Sara J.
Publicado 2022

Refining a Multifaceted Model of Perceived Utility of Genomic Sequencing Results

por Duenas, Devan M., Riddle, Leslie, Guerra, Claudia, Caruncho, Mikaella, Lewis, Hannah, Porter, Kathryn M., Kraft, Stephanie A., Anderson, Katherine P., Biesecker, Barbara, Gilmore, Marian J., Zepp, Jamilyn M., Leo, Michael C., Wilfond, Benjamin S., Joseph, Galen
Publicado 2023

Integrating stakeholder feedback in translational genomics research: An ethnographic analysis of a study protocol’s evolution

por Kraft, Stephanie A., McMullen, Carmit, Lindberg, Nangel M., Bui, David, Shipman, Kelly, Anderson, Katherine, Joseph, Galen, Duenas, Devan M., Porter, Kathryn M., Kauffman, Tia L., Koomas, Alyssa, Ransom, Chelese L., Jackson, Paige, Goddard, Katrina A.B., Wilfond, Benjamin S., Lee, Sandra Soo-Jin
Publicado 2020

Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews

por Mittendorf, Kathleen F., Lewis, Hannah S., Duenas, Devan M., Eubanks, Donna J., Gilmore, Marian J., Goddard, Katrina A. B., Joseph, Galen, Kauffman, Tia L., Kraft, Stephanie A., Lindberg, Nangel M., Reyes, Ana A., Shuster, Elizabeth, Syngal, Sapna, Ukaegbu, Chinedu, Zepp, Jamilyn M., Wilfond, Benjamin S., Porter, Kathryn M.
Publicado 2022

Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium

por Gutierrez, Amanda M., Robinson, Jill O., Outram, Simon M., Smith, Hadley S., Kraft, Stephanie A., Donohue, Katherine E., Biesecker, Barbara B., Brothers, Kyle B., Chen, Flavia, Hailu, Benyam, Hindorff, Lucia A., Hoban, Hannah, Hsu, Rebecca L., Knight, Sara J., Koenig, Barbara A., Lewis, Katie L., Lich, Kristen Hassmiller, O’Daniel, Julianne M., Okuyama, Sonia, Tomlinson, Gail E., Waltz, Margaret, Wilfond, Benjamin S., Ackerman, Sara L., Majumder, Mary A.
Publicado 2021