Factors Associated with Caregiver Sleep Quality Related to Children with Rare Epilepsy Syndromes

por Hesdorffer, Dale C., Kroner, Barbara L., Shen, Jing, Farrell, Kathleen, Roberds, Steve, Fureman, Brandy
Publicado 2020

CureSCi Metadata Catalog–Making sickle cell studies findable

por Pan, Huaqin, Ives, Cataia, Mandal, Meisha, Qin, Ying, Hendershot, Tabitha, Popovic, Jen, Brambilla, Donald, Stratford, Jeran, Treadwell, Marsha, Wu, Xin, Kroner, Barbara
Publicado 2022

An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model

por Treadwell, Marsha J., Mushiana, Swapandeep, Badawy, Sherif M., Preiss, Liliana, King, Allison A., Kroner, Barbara, Chen, Yumei, Glassberg, Jeffrey, Gordeuk, Victor, Shah, Nirmish, Snyder, Angela, Wun, Theodore
Publicado 2022

Hypothalamic Hamartomas: Evolving Understanding and Management

por Cohen, Nathan T., Cross, J. Helen, Arzimanoglou, Alexis, Berkovic, Samuel F., Kerrigan, John F., Miller, Ilene Penn, Webster, Erica, Soeby, Lisa, Cukiert, Arthur, Hesdorffer, Dale K., Kroner, Barbara L., Saper, Clifford B., Schulze-Bonhage, Andreas, Gaillard, William D.
Publicado 2021

Aortic Complications Associated With Pregnancy in Marfan Syndrome: The NHLBI National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions (Gen...

por Roman, Mary J., Pugh, Norma L., Hendershot, Tabitha P., Devereux, Richard B., Dietz, Hal, Holmes, Kathryn, Eagle, Kim A., LeMaire, Scott A., Milewicz, Dianna M., Morris, Shaine A., Pyeritz, Reed E., Ravekes, William J., Shohet, Ralph V., Silberbach, Michael, Dietz, Harry C., Habashi, Jennifer, Prakash, Siddharth K., Maslen, Cheryl L., Song, Howard K., Bavaria, Joseph E., Milewski, Karianna, Weinsaft, Jonathan W., McDonnell, Nazli, Asch, Federico M., Tolunay, H. Eser, Desvigne‐Nickens, Patrice, Tseng, Hung, Kroner, Barbara L.
Publicado 2016