FABry Disease Patient-Reported Outcome-GastroIntestinal (FABPRO-GI): A new Fabry disease-specific gastrointestinal outcomes instrument

por Shields, Alan L., Lamoureux, Roger E., Taylor, Fiona, Barth, Jay A., Mulberg, Andrew E., Kessler, Vivian, Skuban, Nina
Publicado 2021

Experience of switching from a daily to a less frequent administration of injection treatments

por Loftus, Jane, Yaworsky, Andrew, Roland, Carl L., Turner-Bowker, Diane, McLafferty, Megan, Su, Sylvia, Lamoureux, Roger E.
Publicado 2022

Patient-Reported Outcomes in Metastatic Breast Cancer: A Review of Industry-Sponsored Clinical Trials

por Krohe, Meaghan, Hao, Yanni, Lamoureux, Roger E., Galipeau, Nina, Globe, Denise, Foley, Catherine, Mazar, Iyar, Solomon, Jeffrey, Shields, Alan L.
Publicado 2016

Development and Psychometric Evaluation of the Life Interference Questionnaire for Growth Hormone Deficiency (LIQ-GHD) to Assess Growth Hormone Injection Burden in Children and Adu...

por Turner-Bowker, Diane M., Yaworsky, Andrew, Palladino, Andrew, Lamoureux, Roger E., Kelly, Masami, Love, Emily, Pleil, Andreas M., Shields, Alan, Loftus, Jane
Publicado 2020

Psychometric evaluation of the Indolent Systemic Mastocytosis Symptom Assessment Form (ISM-SAF(©)) and determination of a threshold score for moderate symptoms

por Shields, Alan L., Taylor, Fiona, Lamoureux, Roger E., Padilla, Brad, Severson, Kas, Green, Tanya, Boral, Anthony L., Akin, Cem, Siebenhaar, Frank, Mar, Brenton
Publicado 2023

Development of symptom-focused outcome measures for advanced and indolent systemic mastocytosis: the AdvSM-SAF and ISM-SAF(©)

por Taylor, Fiona, Akin, Cem, Lamoureux, Roger E., Padilla, Brad, Green, Tanya, Boral, Anthony L., Mazar, Iyar, Mar, Brenton, Shields, Alan L., Siebenhaar, Frank
Publicado 2021