Caregiver burden, and parents' perception of disease severity determine health-related quality of life in paediatric patients with intoxication-type inborn errors of metabolism

por Bösch, Florin, Landolt, Markus A., Baumgartner, Matthias R., Fernandez, Susana, Forny, Patrick, Gautschi, Matthias, Grünert, Sarah C., Häberle, Johannes, Horvath, Carolina, Karall, Daniela, Lampis, Danila, Rohrbach, Marianne, Scholl-Bürgi, Sabine, Szinnai, Gabor, Huemer, Martina
Publicado 2022