Care Provider Behaviors That Shape Parent Identity as a “Good Parent” to Their Seriously Ill Child

por Neumann, Marie L., Weaver, Meaghann S., Lord, Blyth, Wiener, Lori, Hinds, Pamela S.
Publicado 2021

Honoring the Good Parent Intentions of Courageous Parents: A Thematic Summary from a US-Based National Survey

por Weaver, Meaghann S., Neumann, Marie L., Lord, Blyth, Wiener, Lori, Lee, Junghyae, Hinds, Pamela S.
Publicado 2020

Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach

por Boyden, Jackelyn Y., Feudtner, Chris, Deatrick, Janet A., Widger, Kimberley, LaRagione, Gwenn, Lord, Blyth, Ersek, Mary
Publicado 2021

Association Between Children With Life-Threatening Conditions and Their Parents’ and Siblings’ Mental and Physical Health

por Feudtner, Chris, Nye, Russell T., Boyden, Jackelyn Y., Schwartz, Katherine E., Korn, Emilie R., Dewitt, Aaron G., Waldman, Amy T., Schwartz, Lisa A., Shen, Yuming A., Manocchia, Michael, Xiao, Rui, Lord, Blyth T., Hill, Douglas L.
Publicado 2021