Genomic and stem cell policy issues: more alike than different?

por Majumder, Mary A
Publicado 2011

Beyond Our Borders? Public Resistance to Global Genomic Data Sharing

por Majumder, Mary A., Cook-Deegan, Robert, McGuire, Amy L.
Publicado 2016

Constraints on gene patent protection fuel secrecy concerns: a qualitative study

por Guerrini, Christi J, McGuire, Amy L, Majumder, Mary A, Bollinger, Juli M, Rowan, Paul J
Publicado 2017

Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?

por Guerrini, Christi J., Lewellyn, Meaganne, Majumder, Mary A., Trejo, Meredith, Canfield, Isabel, McGuire, Amy L.
Publicado 2019

Do privacy and security regulations need a status update? Perspectives from an intergenerational survey

por Pereira, Stacey, Robinson, Jill Oliver, Peoples, Hayley A., Gutierrez, Amanda M., Majumder, Mary A., McGuire, Amy L., Rothstein, Mark A.
Publicado 2017

Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi

por Robinson, Jill O, Daoud, Amira, Geary, Janis, Rahimzadeh, Vasiliki, Bollinger, Juli, Guerrini, Christi J, Cook-Deegan, Robert, McGuire, Amy L, Majumder, Mary A
Publicado 2023

Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation

por Majumder, Mary A., Blank, Matthew L., Geary, Janis, Bollinger, Juli M., Guerrini, Christi J., Robinson, Jill Oliver, Canfield, Isabel, Cook-Deegan, Robert, McGuire, Amy L.
Publicado 2021

Fresh takes on five health data sharing domains: Quality, privacy, equity, incentives, and sustainability

por Guerrini, Christi J., Majumder, Mary A., Robinson, Jill O., Cook-Deegan, Robert, Blank, Matthew, Bollinger, Juli, Geary, Janis, Gutierrez, Amanda M., Shrikant, Maya, McGuire, Amy L.
Publicado 2023

Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium

por Gutierrez, Amanda M., Robinson, Jill O., Outram, Simon M., Smith, Hadley S., Kraft, Stephanie A., Donohue, Katherine E., Biesecker, Barbara B., Brothers, Kyle B., Chen, Flavia, Hailu, Benyam, Hindorff, Lucia A., Hoban, Hannah, Hsu, Rebecca L., Knight, Sara J., Koenig, Barbara A., Lewis, Katie L., Lich, Kristen Hassmiller, O’Daniel, Julianne M., Okuyama, Sonia, Tomlinson, Gail E., Waltz, Margaret, Wilfond, Benjamin S., Ackerman, Sara L., Majumder, Mary A.
Publicado 2021

Creating a data resource: what will it take to build a medical information commons?

por Deverka, Patricia A., Majumder, Mary A., Villanueva, Angela G., Anderson, Margaret, Bakker, Annette C., Bardill, Jessica, Boerwinkle, Eric, Bubela, Tania, Evans, Barbara J., Garrison, Nanibaa’ A., Gibbs, Richard A., Gentleman, Robert, Glazer, David, Goldstein, Melissa M., Greely, Hank, Harris, Crane, Knoppers, Bartha M., Koenig, Barbara A., Kohane, Isaac S., La Rosa, Salvatore, Mattison, John, O’Donnell, Christopher J., Rai, Arti K., Rehm, Heidi L., Rodriguez, Laura L., Shelton, Robert, Simoncelli, Tania, Terry, Sharon F., Watson, Michael S., Wilbanks, John, Cook-Deegan, Robert, McGuire, Amy L.
Publicado 2017