Sociodemographic and Disease Correlates of Body Image Distress among Patients with Systemic Sclerosis

por Jewett, Lisa R., Hudson, Marie, Malcarne, Vanessa L., Baron, Murray, Thombs, Brett D.
Publicado 2012

Health Locus of Control and Assimilation of Cervical Cancer Information in Deaf Women

por Wang, Regina, Aldridge, Arianna A., Malcarne, Vanessa L., Choe, Sun, Branz, Patricia, Sadler, Georgia Robins
Publicado 2010

Use of the nominal group technique to identify stakeholder priorities and inform survey development: an example with informal caregivers of people with scleroderma

por Rice, Danielle B, Cañedo-Ayala, Mara, Turner, Kimberly A, Gumuchian, Stephanie T, Malcarne, Vanessa L, Hagedoorn, Mariët, Thombs, Brett D
Publicado 2018

Relationship of Patient Age to Health-related Quality of Life for Children With Craniofacial Conditions: The Parent Perspective

por Ewing, Emily, Blum, Jessica D., Longmire, Emma L., Belza, Caitlyn, Choi, Alyssa, Ataseven, Burcin, Malcarne, Vanessa L., Gosman, Amanda A.
Publicado 2020

Effects of cosmetic and other camouflage interventions on appearance-related and psychological outcomes among adults with visible differences in appearance: a systematic review

por Gholizadeh, Shadi, Rice, Danielle B, Carboni-Jiménez, Andrea, Kwakkenbos, Linda, Boruff, Jill, Krishnan, Ankur, Malcarne, Vanessa L, Thombs, Brett D
Publicado 2021

Effect of support group peer facilitator training programmes on peer facilitator and support group member outcomes: a systematic review

por Delisle, Vanessa C, Gumuchian, Stephanie T, Kloda, Lorie A, Boruff, Jill, El-Baalbaki, Ghassan, Körner, Annett, Malcarne, Vanessa L, Thombs, Brett D
Publicado 2016

Assessing differential item functioning for the Social Appearance Anxiety Scale: a Scleroderma Patient-centred Intervention Network (SPIN) Cohort Study

por Sommer, Sophia J, Harel, Daphna, Kwakkenbos, Linda, Carrier, Marie-Eve, Gholizadeh, Shadi, Gottesman, Karen, Leite, Catarina, Malcarne, Vanessa L, Thombs, Brett D
Publicado 2020

Shortening patient-reported outcome measures through optimal test assembly: application to the Social Appearance Anxiety Scale in the Scleroderma Patient-centered Intervention Netw...

por Harel, Daphna, Mills, Sarah D, Kwakkenbos, Linda, Carrier, Marie-Eve, Nielsen, Karen, Portales, Alexandra, Bartlett, Susan J, Malcarne, Vanessa L, Thombs, Brett D
Publicado 2019

Factors associated with patient-reported likelihood of using online self-care interventions: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study

por Kwakkenbos, Linda, Cumin, Julie, Carrier, Marie-Eve, Bartlett, Susan J, Malcarne, Vanessa L, Mouthon, Luc, Nielson, Warren R, Rannou, François, Welling, Joep, Thombs, Brett D
Publicado 2019

Scleroderma Patient-centered Intervention Network—Scleroderma Support group Leader EDucation (SPIN-SSLED) program: non-randomised feasibility trial

por Thombs, Brett D, Dyas, Laura, Pépin, Mia, Aguila, Kylene, Carrier, Marie-Eve, Tao, Lydia, Harb, Sami, Malcarne, Vanessa L, El-Baalbaki, Ghassan, Peláez, Sandra, Sauve, Maureen, Hudson, Marie, Platt, Robert W
Publicado 2019

P92. IMPACT OF NUMBER OF RECONSTRUCTIVE SURGERIES ON QUALITY OF LIFE OF PEDIATRIC PATIENTS WITH CRANIOFACIAL CONDITIONS

por Modi, Rishi N., Blum, Jessica D., Ataseven, Burçin, Leung, Karen, Belza, Caitlyn, Zaldana-Flynn, Michelle, Ewing, Emily, Rapoport, Chelsea S., Montes, Edna, Rupp, Garrett, Choi, Alyssa, Malcarne, Vanessa L., Gosman, Amanda A.
Publicado 2022

Mental Health Care Use and Associated Factors in Systemic Sclerosis: A Scleroderma Patient‐Centered Intervention Network Cohort Study

por Becetti, Karima, Nguyen, Joseph T., Kwakkenbos, Linda, Carrier, Marie‐Eve, Tao, Lydia, Gordon, Jessica K., Mancuso, Carol A., Welling, Joep, Mouthon, Luc, Bartlett, Susan J., Malcarne, Vanessa L., Thombs, Brett D., Spiera, Robert F.
Publicado 2022

Protocol for a partially nested randomized controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network Support Group Leader EDucation (S...

por Thombs, Brett D., Aguila, Kylene, Dyas, Laura, Carrier, Marie-Eve, Fedoruk, Claire, Horwood, Linda, Cañedo-Ayala, Mara, Sauvé, Maureen, Kwakkenbos, Linda, Malcarne, Vanessa L., El-Baalbaki, Ghassan, Peláez, Sandra, Connolly, Kerri, Hudson, Marie, Platt, Robert W.
Publicado 2019

Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPI...

por Wojeck, Robyn K., Knisely, Mitchell R., Bailey, Donald E., Somers, Tamara J., Kwakkenbos, Linda, Carrier, Marie-Eve, Nielson, Warren R., Bartlett, Susan J., Malcarne, Vanessa L., Hudson, Marie, Levis, Brooke, Benedetti, Andrea, Mouthon, Luc, Thombs, Brett D., Silva, Susan G.
Publicado 2023

Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating ‘not applicable’ responses as missing data: a Scleroderma Patie...

por Merz, Erin L, Kwakkenbos, Linda, Carrier, Marie-Eve, Gholizadeh, Shadi, Mills, Sarah D, Fox, Rina S, Jewett, Lisa R, Williamson, Heidi, Harcourt, Diana, Assassi, Shervin, Furst, Daniel E, Gottesman, Karen, Mayes, Maureen D, Moss, Tim P, Thombs, Brett D, Malcarne, Vanessa L
Publicado 2018

Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND)

por Kwakkenbos, Linda, Carrier, Marie-Eve, Welling, Joep, Turner, Kimberly A., Cumin, Julie, Pépin, Mia, van den Ende, Cornelia, Schouffoer, Anne A., Hudson, Marie, van Breda, Ward, Sauve, Maureen, Mayes, Maureen D., Malcarne, Vanessa L., Nielson, Warren R., Nguyen, Christelle, Boutron, Isabelle, Rannou, François, Thombs, Brett D., Mouthon, Luc
Publicado 2022

Effects of a support group leader education program jointly developed by health professionals and patients on peer leader self-efficacy among leaders of scleroderma support groups:...

por Thombs, Brett D., Levis, Brooke, Carrier, Marie-Eve, Dyas, Laura, Nordlund, Julia, Tao, Lydia, Aguila, Kylene, Bourgeault, Angelica, Konrad, Violet, Sauvé, Maureen, Connolly, Kerri, Henry, Richard S., Østbø, Nora, Levis, Alexander W., Kwakkenbos, Linda, Malcarne, Vanessa L., El-Baalbaki, Ghassan, Hudson, Marie, Wurz, Amanda, Culos-Reed, S. Nicole, Platt, Robert W., Benedetti, Andrea
Publicado 2022

The Scleroderma Patient-Centered Intervention Network Self-Management Program: Protocol for a Randomized Feasibility Trial

por Carrier, Marie-Eve, Kwakkenbos, Linda, Nielson, Warren R, Fedoruk, Claire, Nielsen, Karen, Milette, Katherine, Pope, Janet, Frech, Tracy, Gholizadeh, Shadi, Hummers, Laura, Johnson, Sindhu R, Piotrowski, Pamela, Jewett, Lisa, Gordon, Jessica, Chung, Lorinda, Bilsker, Dan, Turner, Kimberly A, Cumin, Julie, Welling, Joep, Fortune, Catherine, Leite, Catarina, Gottesman, Karen, Sauve, Maureen, Rodríguez-Reyna, Tatiana S, Hudson, Marie, Larche, Maggie, van Breda, Ward, Suarez-Almazor, Maria E, Bartlett, Susan J, Malcarne, Vanessa L, Mayes, Maureen D, Boutron, Isabelle, Mouthon, Luc, Wigley, Fredrick, Thombs, Brett D
Publicado 2020

Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program

por Kwakkenbos, Linda, Østbø, Nora, Carrier, Marie-Eve, Nielson, Warren R., Fedoruk, Claire, Levis, Brooke, Henry, Richard S., Pope, Janet, Frech, Tracy, Gholizadeh, Shadi, Johnson, Sindhu R., Piotrowski, Pamela, Jewett, Lisa R., Gordon, Jessica, Chung, Lorinda, Bilsker, Dan, Tao, Lydia, Turner, Kimberly A., Cumin, Julie, Welling, Joep, Fortuné, Catherine, Leite, Catarina, Gottesman, Karen, Sauvé, Maureen, Reyna, Tatiana Sofia Rodriguez, Hudson, Marie, Larche, Maggie, van Breda, Ward, Suarez-Almazor, Maria E., Bartlett, Susan J., Malcarne, Vanessa L., Mayes, Maureen D., Boutron, Isabelle, Mouthon, Luc, Benedetti, Andrea, Thombs, Brett D.
Publicado 2022

The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and...

por Kwakkenbos, Linda, Jewett, Lisa R, Baron, Murray, Bartlett, Susan J, Furst, Dan, Gottesman, Karen, Khanna, Dinesh, Malcarne, Vanessa L, Mayes, Maureen D, Mouthon, Luc, Poiraudeau, Serge, Sauve, Maureen, Nielson, Warren R, Poole, Janet L, Assassi, Shervin, Boutron, Isabelle, Ells, Carolyn, van den Ende, Cornelia HM, Hudson, Marie, Impens, Ann, Körner, Annett, Leite, Catarina, Costa Maia, Angela, Mendelson, Cindy, Pope, Janet, Steele, Russell J, Suarez-Almazor, Maria E, Ahmed, Sara, Coronado-Montoya, Stephanie, Delisle, Vanessa C, Gholizadeh, Shadi, Jang, Yeona, Levis, Brooke, Milette, Katherine, Mills, Sarah D, Razykov, Ilya, Fox, Rina S, Thombs, Brett D
Publicado 2013